Posted 13 May 2014 - 02:04 PM
Sorry you're feeling discouraged and the anxiety is getting to you. Dealing with a chronic disease like this is difficult, especially when you get monthly labs that become a constant reminder. Hopefully, in time all the CML maintenance you go through will fall more into the life routines we go through, like physicals, exercise, teeth cleaning, etc. to keep us as healthy as we can be. Not always pleasant but necessary.
Your Platelets are at the low end of the normal range for my lab. As Pat said, they sometimes tend to fluctuate, so really no need to be concerned. I have chronic low platelets and my Dr isn't concerned until they're below 50. For some people, even at very low levels, they have no side effects from it. Others need to be more careful about cuts and bruising. My dentist won't work on me if platelets are below 40. I tell you this in hopes of reassuring you so you won't worry so much. The unknown is so difficult to manage.
Take care and all the best! Melanie
Dx - 05/2011; PCR: 15.04; Fish: 87% Slow responder due to pancytopenia. Current - Bosulif - Nov: 2012, Mar 2016 lowered to 300 mg. 07/16 back to 400 mg. Clinical trial drug, Promacta, Feb 2013, for low Platelets.
CyCR - Aug 2014, Positive for 1 chromosome Sep 2015. PCR: 12.77 in Oct, 2012 to 0.04 (MDA) in Mar, 2016. 4/2016 - 0.126 (Local lab (IS); 05/2016 - 0.195 (local); 6/2016 - 0.07 (MDA); 7/2016 - 0.03 (local) 9/13/2016 - 0.16 (MDA); 9/26/2016 - 0.31 (MDA); 11/2016 - 0.012 (local); 01/2017 - 0.24 (MDA); 04/2017 - 0.09 (MDA); Cytogenetics show der(1:7)(q10;p10)7 chromosome mutation. Repeat of Sep 2015. PCR - 6/2017- 0.035 (local); 10/2017- 0.02 (MDA)