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#1 Guest_billronm_*

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Posted 31 December 2013 - 11:42 PM

HAPPY NEW YEAR EVERYBODY           MAY 2014 BE A GREAT YEAR FOR  ALL OF US                                              SINCERELY BILLIE

#2 lundgrk1


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Posted 31 December 2013 - 11:45 PM

Amen Billie.    Happy new year to you too and may it be a healthier year for all of us.  



#3 SUE


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Posted 01 January 2014 - 12:30 AM

Happy New Year, Billie, and happy new year to everyone.

Thank you all for being there.


Dx  April 2013, FISH 62,  BMB not enough for PCR test; put on Gleevec 400;

 August 2013, FISH 8.7;

Oct 2013, FISH 5.6

Stopped Gleevec Nov 2013 for 6 weeks due to terrible side effects; Jan 2014 started Sprycel 50mg;

Feb, 2014 PCR  6.8

May,2014  PCR   .149

Aug, 2014 PCR    .015

Nov. 2014 PCRU

March, 2016  went down to 40mg Sprycel

Oct. 2016   stopped Sprycel for a couple weeks due to concern about shortness of breath.  Echo showed mild PAH.

Nov 1 2016  resumed Sprycel 20 mg daily 

Dec 2016  PCRU

March 2017  PCR 0.020

May 2017     PCRU

Sept  2017   PCRU

Dec    2017  PCRU


#4 mariebow



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Posted 01 January 2014 - 01:19 AM

Happy New Year to you and my special family also

#5 hannibellemo


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Posted 01 January 2014 - 09:24 AM

Happy New Year, everyone!




"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>

#6 gianfranko



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Posted 01 January 2014 - 01:13 PM

Happy New Year to you too and to everyone else as well.

#7 CindyS


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Posted 01 January 2014 - 03:15 PM

Wishing all of you a very happy and a much healthier new year.  May our good days outnumber our bad days, and our side effects be few, and may we all maintain MMR or PCRU!!

I don't contribute here very often, but I'm extremely grateful for all of you who do, you've made understanding CML much easier than it would have been otherwise and every time one of my side effects makes me think I'm crazy, I jump on here and find out that I'm not alone, and it's all just part of my "new normal".  I want to start the new year with a great big THANK YOU!!

Take care.


#8 Susan61


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Posted 01 January 2014 - 06:04 PM

Happy New Year to you too Billie, and to everyone else who is indeed a special family that we have here.

Lets all pray for better things in 2014 for everyone to see some real positive changes in every way.

God Bless All


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