Hi everyone,
What was your experience in reaching, or getting to, CCyR? I get confused by the definition of CCyR as "no detectable CML cells." This isn't really accurate, right, because you can be in CCyR and still show detectable levels via PCR. So I guess they mean only when using FISH? But wouldn't some labs or FISH tests be better than others?
After just over a year of treatment (and after switching drugs) my PCR came back at 0.9%. I was thinking that I was doing OK given that I was at least on the right side of the decimal point but somehow my FISH test also came back at 0.8%. It stated that they had found 4/500 cells, which is pretty consistent with the PCR. I just wasn't aware that FISH testing was accurate out to 500 cells.
So I guess at this point, it's CBNQ CCyR which would equate to a "close but not quite" CCyR?
Thanks,