Nice Gerry! Best of luck with your TKI stoppage!
Gleevec 400mg @ 2.5 years - Results
Started by
LivingWellWithCML
, Oct 16 2013 05:28 PM
23 replies to this topic
#21
LivingWellWithCML
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Posted 27 November 2013 - 12:28 PM
Dan - Atlanta, GA
CML CP Diagnosed March 2011
Gleevec 400mg
#22
GerryL
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Posted 27 November 2013 - 06:58 PM
Thanks Dan,
First PCR test will be at end of December, with public holidays, I'll probably get results a couple of weeks into January. Though my side effects haven't been too bad, I'm enjoying not having GI issues and fluid retention.
I was hoping that some of my joint issues would disappear - I have recently developed a cracking noise at the base of my skull. Specialist felt it wasn't the Gleevec at work, but maybe osteoarthritis - "you are late 40s you know" he told me.
#23
jjg
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Posted 27 November 2013 - 07:05 PM
Hey Gerry. Good luck with your discontinuation!!!
What ever happens I hope you enjoy being more healthy and eating what ever you like over Christmas.
Dx Dec 2010 @37
2x IVF egg collection
Glivec 600 & 800mg
PCRU March 2012
Unsuccessful pregnancy attempt - relapsed, 3 months interferon (intron A), bad side effects from interferon
Nilotinib 600mg Oct 2012
PCRU April 2013, 2 years MR4.5 mostly PCRU with a few blips
April 2015 stopped again for pregnancy attempt (donor egg), pregnant first transfer, 0.110 at 10wks, 2.1 at 14wks, 4.2 at 16wks, started interferon, slow dose increase to 25MIU per wk, at full dose PCR< 1 for remainder of pregnancy
Healthy baby girl Jan 2016, breastfed one month
Nilotinib 600mg Feb 2016
MMR May 2016
PCRU Feb 2017
#24
GerryL
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Posted 27 November 2013 - 11:08 PM
Thanks Josie,
It's nice to be able to have a glass of wine, without puffy ankles resulting.
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