Posted 18 September 2013 - 03:10 PM
Good question. I have no idea or knowledge about other tests, and/or what they might mean, sorry. It will be interesting to learn more if/when some knowledgeable folks post their replies.
Just for the record, since I got my test results yesterday (no idea what it means):
P190 BCR-ABL1 Not Detected
P210 BCR-ABL1 Not Detected
If these are important markers for treatment, it would be good to know more.
Good luck with regaining a strong downward PCR score. At one point early on, I was off Gleevec for four weeks and my PCR and WBC increased in my next testing. After restarting Gleevec for one week I switched to Sprycel, on which I became permanently PCRU within four months.
Testing for being on the right TKI for one's individual treatment: this would be a helpful test!
Be alert, but not overly concerned.
• Dx Oct. 22, 2008, WBC 459k, in ICU for 2 days + in hospital 1 week
• Leukapheresis for 1 week, to reduce WBC (wasn't given Hydroxyurea)
• Oct. 28, 2008: CML confirmed, start Gleevec 400mg
• Oct. 31, 2008: sent home when WBC reached 121k
• On/off, reduced dose Gleevec for 7 months
• April 2009: Started Sprycel 100mg
• Sept. 2009: PCRU 0.000
• Sept. 2011: after 2 years steady PCRU & taking Sprycel 100mg before bed, quit Sprycel (with permission)
• Currently: still steady PCRU, testing every 6 months 🤗
— Fatigue, hearing loss continue, alas, but I prefer to think it is all getting better!