Hi everyone,
It's 3:30 am and I can't sleep,my brain won't stop working. .I'm back on Sprycel 50mg. so far so good. I'll be getting a chest x-ray every month for several months. Our drive to Pittsburg to see that other onc about a second opinion, went well he agreed to let me go on Sprycel again. So I'm keeping my fingers crossed that it works out. I hope your doing okay Pat, hopefully we won't have to deal with a pe anymore.
While we were driving to Pittsburg our service engine light went on and stayed on all the time, Ron checked under the hood everything seemed okay. So we made it to Pitts. and back home safe and sound, you know how calm I am I'm clutching our auto membership card and the cell phone . The next morning we took it up to our mechanic, we blew a head gasket, and a whole bunch of other things had to be done. It cost us $1100.00 to get it fixed. But at least we didn't have to buy a new car. I'm always saying I'm going to blow my head gasket, not my car.
So everything was fine for a few days and out of the blue the cancer center called me and said I had to have some iron infusions. Remember 2 summers ago I had 3 and then I had the allergic reaction. Iron Pills make me so sick, so they are trying something else, (I hate it when they say that). They are giving me tylonal.(I really don't plan on having a headache that day, then benydryl, then steroids, then the infusion medicine. It will take about an hour for each transfution, I'll probably walk out of there looking like Little Lotta!
That same day I got a call from that plastic surgeon I went to see, I'm not having the surgery I was looking into. But he noticed this mark on my face and he did a biopsy he just shaved a bit off the top. He called, it's a basil cell carcinoma! I've had them before actually I've had several skin cancers plus the melanoma. I have all kinds of scars and gouges where they had to remove them. But this is the first one on my face. And it's about 3/4 of an inch to the right of my mouth. I'm really scared of this one. I thought about not having it done, but it would just turn into a melanoma. I just hope this guy is good. He is supposed to be. I'm afraid I'll wake up looking like the elephant man. I'd like to convince my ins co to pay for the damage the Gleevac did to my eyelids. Oh well I'll just keep on using scotch tape! What a rotten year since last May for me. Hopefully things will get better for us.
One thing I always had was a sense of humor to get me through the rough times. I sure hope it comes back.
Welcome to all our new people, I see we have quite a few. All the wonderful people on this discussion board will help you get through this. And as you read the board you'll see that a lot of us go through what you are going through. And remember everyone of us has felt the way you do right now. Sincerly Billie
