I don't post often, but I sure appreciate all that you share.
My situation is not bad. I've responded very well as far as pcr tests go. Here's a brief recap
Began Tasigna 12-11
PCR at DX: 8%
By July 2012 pcr 0.035
Sept 2012 PCRU
Dec 2012 PCRU
Apr 2013 0.042
I started on 600mg a day of Tasigna, had a couple of brief times of half dose, then most of this time have been at 450mg. Then in Dec 2012 side effects just caught up with me too much and doc and I decded to do 300mg a day to see if I could maintain. I feel human again on half dose.
So, my doc said on the phone that this is a small enough uptick to not need to make a change. I am incredibly sensitive to all medications. The fatigue and dark mental cloud is very difficult even on the 450mg dose.
If you were me, would you try to go back up? Stay the course and see if this low level continues? I fear that I am just barely keeping this illness at bay.
Thanks for any input. I see the onc tomorrow to talk it over.