I had my 2 week follow up after my pe with my onc today. He want's me to get another opinion from an onc in Pittsburg. Since I couldn't take Gleevac, and the pe was from Sprycel I guess he want's me to get a second opinion on what I should try next. He wanted me to get a chest x-ray today but the technicians had already left. Nice huh! So I have to go back on Monday to get one. He mentioned hydrea to me, I only told him I have heard of it . I didn't ask him why he mentioned it my mind went south when he said that. Could he be planning on putting me on hydrea until a new tki is recommended? What is Hydrea and what are the side effects? I thought that stuff was history! He did bw today. I don't think I lost my pcr.
I do think I'm losing my mind, Is all this stuff he's doing normal? I tried to talk him into trying sprycel again, no luck! I guess I just needed to vent, sometimes I just get so tired of all this crap. I really thought Sprycel was the drug for me. Now my mind is blowing everything out of proportion at the thought of taking hydrea or another tki. Billie