Several months ago Jamie T. joined the CML group for a short time. Although she is no longer posting I have followed her progress via another social media site. Yesterday, she addressed the Senate Committee in Utah about the cost of our medications, CML, outragous co-pays and other problems. Jamie has CML but also struggles with additional health problems. I have added a few links and info on this subject. This discussion in very close to home for me, although I am in Pennsylvania, for the previous15 months my 100 mg Sprycel co-pay was $60. Beginning January 4, 2013 my co-pay has increased to $850 per month. Along with these changes, BC/BS is standing firm the BCR/ABL test is experimental and not covered under any policy, at least in my personal situation. Because I have read over the past year and a half about many who deal with high co-pays, treatment and testing not covered by insurance, and the weight these things add to an already overloaded mess with the CML diagnosis, I felt it appropriate to share.
Message was edited by: Abena