Dear blood sugar questions
When I first started on Tasigna over 2 yrs ago I wrote frequently in desperation when I saw my blood sugar levels steadily increasing. Fasting 160 to 180, A1C 6.5, for a yr or so, late afternoon, sometimes I could get it down just under 100 but not any more. When I went off Tasigna for a month my numbers came back down close to normal. I have found no solution for it, next step I guess is to go on medication. Adding one more med to my arsenal really discourages me. I work so very hard on eating the right thing, loosing weight and exercising. Between the fasting hrs required with Tasigna and trying to stay out of full blown diabetes, I feel like food controls my life. I have become obsessive about it and it has changed my life style. I actually make decisions around what, when and how am I going to eat what is available. Recently did not enjoy a 3 day trip to celebrate my great grandsons first birthday because we ate out and at other peoples houses and I could not control what other people served. Nor could I enjoy eating at Thanksgiving (did enjoy the company and laughter so I guess that is what Thanksgiving should be any way). Food has become my enemy.
So much for my complaining. Every CML drug has its side effects and none of them are an easy road. I was diagnosed with CML 7 yrs ago and I am still alive and should be grateful, for without them I would not have even been here to celebrate my great grandsons birthday. I must warn all of you tho, if you have surgical procedures, cortisone injections etc it can elevate your blood sugar dramatically. Mine went over 300 after a steroid shot for sciatica, it also went up that high for what ever they give you for cataract surgery. Before anyone gives you injections find out the impact on blood sugar. So far, I don't know what you do to prevent it or treat it after you have them, but Dr.'s need to know this. the only thing I know to do to bring down blood sugar is exercise and water, something you really don't feel like doing after surgery.
I hope someone will write in here with some solutions. I think my onc may try one of the new CML meds coming out next yr. I have even thought about going back to Sprycel if it were not for those bad pleural effusions.