I have been lately reading hundreds (thousands?) of posts in the CML discussion group.
I still find troubles to follow all the abbreviations used when talking on tests results: to name some FISH, PCR, BCR/ABL, etc.
I am new to the Forum, and in a way as a CML patient. Diagnosed 9 months ago and my test results are progressing as they should be. However I do not have this knowledge on all the indicators you usually mention and I would also like to be honest to have that info clear on my side.
My dates with my Dr. are of the type: "things are how they should be: all progressing in the right direction and with the right timings"
The more I read here, the more I understand and the more I think I should have my indicators clear on my side as well.
1.- Can anyone tell me please the meaning of the most common abbreviations you use here?
2.- Can anyone help in telling me the indicators I should track as if I were a newly diagnosed? With that set of indicators I will reconstruct my 9-month life after DX (this abbreviation one I got it right !!!! ). I hope then to be able to share "my case" with people in this forum that are much more knowledgeable than I am and try to get their valuable feedback.
I feel as if I have to learn first the language you speak guys (and also have a clear picture of the progression of my indicators).
Thanks to all for the great support that this forum means. I have enjoyed these last weeks reading the "history" in this forum.