I am new to this discussion board. I have been reading and reading for the past days and have also dared to post a couple of comments to give people my insight with the idea of helping.
My details: CML dx 9 months ago, Glvc 400 mgs, mild side effects. So far all is going well as regards indicators.
I see so much around on Glvc, Tasigna, Sprycel and some of the new approved drugs that I wonder whether the best thing to start with is Glvc or go straight to the other 2 major drugs.
I was told by my doctor that if Glvc was working fine, I would stick to that. As for the future, there is always time to consider other drugs.
Would it be fine to say that Glvc is the preferred initial treatment and that if things start to go in the wrong direction, then it is time to consider other options?
The more historical perspective we have on the drugs could be changing this approach?
Are newly diagnosed patients in top medical institutions being given Tasigna/Spricel as first line treatment?
Does anybody know studies that may be suggesting that is better to start with other drugs but Glvc?
Would like to end this first message with a message of support for everybody suffering CML. Although I am new to this I have found support in many of the messages I have read. In difficult times, people get closer and supportive. And this is good. Some people gather together because they like biking or trainspotting or traveling or playing Wii or collecting stamps........... we meet here because we have something in common and we want to feel better. I hope to be able to help everybody that needs and also to get some help from you.