6 replies to this topic

[janekaye]

I haven't visited the boards much this year.  I had two apparently "rare" heart episodes, and my husband, who was ill all year, died at the end of July.  Not much time for checking on the boards, but I did still look in from time to time.

I still see a few names on the boards from a year ago -- also lots of new names which makes me stop and think how lucky we are to have the boards when we need them.  There's lots of support here, especially for the newly diagnosed.  It's been over four years since I was dx, and I've been on Sprycel for about the last 2 1/2 years.  The last 18 months or so, my PCR has been 0.000 - yay!! is what my onc says every three months.

About a month ago, I noticed what I knew was a petechiae on the inside of my forearm.  I didn't give it much thought, because it faded within a few days.  And then today, I noticed one on my stomach.  I think seeing a second one gave me pause.  They were both very small (less than 1/4 inch) and just single bruises.

I have many reasons to get bruises - the process of selling our home and moving to a smaller one plus a wonderful, but wild dog who adores me and must therefore jump all over me are the two primary reasons right now.  However, these are definitely petechiae, not normal bruises.  They are perfectly circular.

Any thoughts? 

Thanks as always for your support,

- janekaye

[Badger]

Could be low platelets.  Had a CBC lately?

[hannibellemo]

Dear JaneKaye,

Please accept my sincere sympathies on the loss of your husband. I had no idea when you were helping me get through my PE last spring what you were dealing with at home!

I had frequent scatterings of petechiae when I was on 100mg of Sprycel, not so many on 50mg, mostly on my hands and upper arms but I would go through periods where they would appear on my torso, too. They must be fairly normal.

Congratulations on your continuing PCRU! It's so good to hear from you, but I'm so sad about the news.

Pat

[CallMeLucky]

Are they Cherry Hemangiomas?

[ChrisC]

Dear JaneKaye,

My heartfelt sympathies for your loss. May the good times be remembered, and the future embraced, one day at a time.

And congratulations on your continuing PCRU status: well done!

Plus: glad to see you are still around

When on Sprycel, I would sometimes get the perfectly circular little red dots, about the size of a pencil eraser, then they would fade; it would happen maybe once or twice a year. Never figured out their source, or felt a worry. Things happen, and if they are important, they usually do get our attention somehow. I hope you get good info and it helps you.

Take care,

ChrisC

[Tedsey]

Dear Janekaye,

I am so sorry to hear about your husband.  I hope you are doing well.  Nevertheless, I am so happy to hear about your PCRU status.  I also get clusters of pin point petichae.  I get it occasionally on the base of my neck, upper chest and around my eyes.  Now, I have low PLT, but I actually had the petichiae way,way before dx.  It would appear on my inner arms  especially where they bend and the backs of my legs.  I was never told I had a PLT issue before CML.  But I noticed that aspirin always exacerbated the rash.  So, I am unsure my present petichiae is low PLT related, or what.  It goes away and no one seems concerned about it.  Unless you are showing other signs of bleeding.  It is probably not an issue.  But it is always good to keep an eye on it. 

Please take care.  Wishing you all the best,

Tedsey