7 replies to this topic

[cleocans]

So I woke up today with a rash over most of my body.  On my face, chest, arms, back and legs.  The rash is small red dots, not very raised, almost flat.  It does not itch. I noticed a few red spots on my neck and face this past weekend but now it's all over me. I have been taking Sprycel almost 15 months now and have never experienced anything like this before.  Could this be from the Sprycel or something different.  I am also getting over a bit of sickness.  I had a headache and nausea for about 5 days no fever though.

Thanks,

      Kim

[scuba]

Kim - When was the last time you had a CBC and what were the platelet counts? Sprycel can suppress the normal immune system - especially Neutrophils and Platelets.

The suppression can come and go and needs to be monitored when "symptoms" appear. Red dots/rash over the body especially ones that are flat and don't itch could be a sign of Petechia (low platelets), but without a CBC there's no way to know.

[cleocans]

Scuba, my last CBC was in July and was normal.  I go in for my next CBC  next week.  I had low platelets when diagnosed but since the end of August 2011 they have been in the normal range.

[August1]

Hi Kim,

It sounds like I have the exact same thing after having been on Sprycel for about three months. Mostly on my abdomen, arms, and back. My CBC/Diff and all counts are normal. PCR is also good so I'm responding to Sprycel. My oncologist took a look today and thinks it's related to the drug and suggested we take a "watch and see" approach until my next appointment in two months. Did you ever get confirmation on your issue?

[cleocans]

Hey Wespahr,

      By the time I got to my next onc.  appointment my rash was gone.  I mentioned it to my Dr but she didn't say either way if it was from Sprycel or not.  I don't remember how long the rash lasted, at least 2 weeks though.  I have never got that rash again.

[August1]

Hi Thanks for the feedback,

I noticed mine just starting about two weeks after starting Sprycel. Since then it's been slowly progressing and spreading. Only seems to itch in spots like my scalp and neck. A little on abdomen. May have to see a dermatologist to get some feedback.

[super99]

I have rash and other skin issues  after taking Sprycel. These side effects come and go. Went to see dermatologist and got steroid topical cream, Trianex.  Last month, rashes on both ears and they were very itchy and burning. Again, using Trianex helped.

[alexamay09]

I had the rash on tasigna and  on sprycel. It was hot and painful and on my face. However i just take an anti histamine every night now and that has kept it at bay.

Alexq