Hi I am Pam, DX with CML in 2005 and I live close to Indianapolis Indiana.
I have been on Gleevec since 2005.
Our insurance is Blue Cross Of Michigan UAW Retiree. We live in Indiana, but the automakers (that are based in this area, Indiana) the insurance operate or base is out of Michigan. It is the CHRYSLER UAW that has contracted Blue Cross and our prescription drug coverage is contracted with Medco Acredo which will soon change their name to Express Scripts.
Anyhow my Gleevec has to be re approved or authorized ever December. I get a letter sometime, every fall, from the UAW, to have my oncologist call a certain number to verify, I still need the Gleevec, (duh). Then the Chrysler UAW who hold the trust funds for our insurance, has to approve the Gleevec. Sometimes I call them and ask if it is approved for the whole next years, and they will say it is subject to change on a day to day basis depending on the world economy, or something like that. If I ask Blue Cross about paying for labs, etc, sometimes they will refer me to the UAW who has contracted them and I get the same answer, subject to change on a day by day basis, based on the world economy. Also our Blue Cross co pays and deductible go up every year. We pay monthly premiums and cobra from dental and optical. So the insurance or better said the UAW Retiree holds us hostage.
I am hoping to stay on Gleevec as it will become Generic in 2015 and hopefully drop from what is currently $6,000.00 for a 30 day supply of 400 mg, to maybe I would venture a guess of $200,00 to $300.00 a month. My primary doctor said since CML is a rare cancer there are not that many people on it compared to other cancer drugs so I would not drop to an all time low.