My sister (19 yrs young) just diagnosed with CML, It was really heartbreaking when i found out but then i found this discussion board which was really supportive for me. You guys are great!
Only regret that i have is she is in India right now and i am here but her paper work for immigration is in progress so i know she will be here in states soon (next year).
I have few questions on drugs and treatment and what do the reports results mean?
when she was diagnosed her WBCs were 178,000. her Oncologist had put her on Hydroxyurea and Allopurinol for about 10 days until her BCR/ABL Quantitative real time PCR came 100% positive,
Her report result says Major Cytogenetic Response, 35%>Ph+>0%, i would like to know what does it mean in terms of CML?
I spoke with her oncologist and he said that this disease is curable with treatment available today and after 10 days also when my sister went again after 10 days on Hydroxyurea for a blood work, at that time her WBCs came out to 22,000 and he put her on to Tasigna 300mg twice a day, i asked him why Tasigna as a first line of treatment and he said it has a better effectiveness with fewer side effects. when she started Tasigna she was good for two days then she had complain of pain of muscle around her eyes and Muscle pain of lower feet, she went to ophthalmologist and he gave her some eye drops and in two days her pain around eyes went away. she is eating healthy, going to school and doing all the normal activity but her complain about muscle pain in lower feet is still there, she is occasionally taking acetaminophen (pain reliever) but is there any better way to fight that muscle pain of lower feet? also she is taking multivitamin, calcium, vitamin D, Vitamin B complex, should she take any more supplements? can she certain food that can help with this muscle pain?
also another question i have is How long treatment will last for Tasigna? she has another appointment on 31st which will be her 3rd appointment with this oncologist and first time after Tasigna, also i don't know why doctor didn't perform BMB, however he said he is going to do that after couple of months.
Your Knowledge would be greatly appreciated