Posted 24 August 2012 - 06:36 PM
I got my 6 month PCR test results back today. Great News. Doc said I was CMR. MY PCR was 0.1% IS.
My son gets his PCR next month, both of us have had CML for 6 months.
It is quite disturbing to find out today the 16 year old neighbor boy got admitted today in Riley's Children hosp for CML. It is just to much of a coincidence that three of us now have CML, which is suppose to be a rare disease. What do you check or who do you call?
1 2012 CML detected Started Gleevec 400 mg
In nov 2014 my pcr started to rise by Feb I stopped Gleevec and went onto
2 2015 Tasigna 600 mg/day
I have been PCRU for 2 years and stopped Tasigna 4 7 2017
5 8 2017 results 0.008
5 30 2017 results 0.028
6 30 2017 results 0.3, I have restarted the Tasigna because it went above 0.1
My son
11 2011 CML detected Started Gleevec 400 mg
He went 2 1/2 years on gleevec and lost PCRU
Started Sprycel went PCRU for 2 years and stopped the Sprycel, went back for 3 month checkup and PCR was 8.0
He went back onto Sprycel and now is PCRU again
3 16 2017 results 0.008
6 1 2017 results 0.002