I'm trying to find someone that is in a similar situation to mine, as information for it is nearly impossible to come by!
Is there anyone here (or know of anyone) that has been diagnosed CML and currently working as a commercial pilot?
The FAA has allowed a few airmen with this condition under control for quite a few years now under a "Special Issuance" medical certificate.
I can't find info on how likely it is to get one on gleevec or sprycel.
I was diagnosed with CML in October 2011. I grounded myself automatically 1 week before diagnosis just because I was not feeling well, and have not flown since.
Started with Tasigna and got a hematological response quickly within a month. Around the end of January started getting low platelet counts, followed by low counts in WBC, ANC, HGB. After platelet & blood transfusions every week for about 2 months, a BMB found bone marrow deeply suppressed, so discontinued Tasigna on May 8th due to aplasia. Started on Gleevec on July 1st and have been on it without side effects, other than mild stomach queasiness within an hour or two after taking the medicine. No other side effects.
So my main questions are:
-How was their process with the FAA requesting the Special Issuance
-How long was the process (from initial submission of paperwork, until receiving SI letter)
-How was their communication with the FAA during the process
-Any help from companies like AOPA, AMAS (Aviation Medicine Advisory Service), etc??
-Special Issuance under Gleevec?, Sprycel?
Thank you to anyone with any info!