Advanced Member
Posted 27 July 2012 - 04:45 PM
Hi Jon,
Here's hoping that you are getting lots of rest and are adjusting to the Sprycel quickly and easily: feel better soon!
I sent you a private message a couple of days ago; just wanted to check that you know how to access your mailbox so it doesn't get over full. You need to delete emails when done, as it is full with a total of five, in and out combined.
ChrisC
Be alert, but not overly concerned.
• Dx Oct. 22, 2008, WBC 459k, in ICU for 2 days + in hospital 1 week
• Leukapheresis for 1 week, to reduce WBC (wasn't given Hydroxyurea)
• Oct. 28, 2008: CML confirmed, start Gleevec 400mg
• Oct. 31, 2008: sent home when WBC reached 121k
• On/off, reduced dose Gleevec for 7 months
• April 2009: Started Sprycel 100mg
• Sept. 2009: PCRU 0.000
• Sept. 2011: after 2 years steady PCRU & taking Sprycel 100mg before bed, quit Sprycel (with permission)
• Currently: still steady PCRU, testing every 6 months 🤗
— Fatigue, hearing loss continue, alas, but I prefer to think it is all getting better!
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