Advanced Member
Posted 22 June 2012 - 12:27 PM
Hi Everyone,
I got very good news today. I am MMR .0000 After 2 years and 1 month I am finally MMR. What a way to start a Friday!
I think its time to have a good glass of wine tonight and enjoy!
I've been on 50 mg of sprycel for about 6 months now and still reached MMR. Woo Hoo
Have a great weekend everyone!
thank you
Cathy
Cathy
DX 5-2010 Started normal hydra then Gleevec for 9 months stopped working
Tasigna after 5 pills pancreatis numbers jumped up quickly
Started Sprycel 100, 8-2010 for a 3 years went down to 50 mg numbers at one point really jumped up quickly
currently on 70 mg for last 2-3 years trying to get onc to reduce dose Numbers never stabilize never MMR till 4-2017 bearly and jump up and down in and out of MMR stayed MMR for 3 months then
After 6 years on sprycel fluid on both lungs, drained still have some fluid on lungs, and currently off drug 4 months now
numbers lower then ever go figure I've never been this low of a number
last 2 tests .0686 and .0181 !!
Advanced Member
Posted 22 June 2012 - 12:49 PM
Congratulations Cathy! That is great news!
Kim
Advanced Member
Posted 22 June 2012 - 01:56 PM
Woo Hoo indeed! Congrats Cathy...
Take care...
Mike
Member
Posted 22 June 2012 - 02:04 PM
Wonderful news! Congratulations Cathy! I think I'll have a glass of wine this evening too.
Advanced Member
Posted 22 June 2012 - 02:28 PM
Thank you all so much!
Everyone have a drink on me !
Have a great weekend all.
Cathy
Cathy
DX 5-2010 Started normal hydra then Gleevec for 9 months stopped working
Tasigna after 5 pills pancreatis numbers jumped up quickly
Started Sprycel 100, 8-2010 for a 3 years went down to 50 mg numbers at one point really jumped up quickly
currently on 70 mg for last 2-3 years trying to get onc to reduce dose Numbers never stabilize never MMR till 4-2017 bearly and jump up and down in and out of MMR stayed MMR for 3 months then
After 6 years on sprycel fluid on both lungs, drained still have some fluid on lungs, and currently off drug 4 months now
numbers lower then ever go figure I've never been this low of a number
last 2 tests .0686 and .0181 !!
Guest_billronm_*
Posted 22 June 2012 - 09:06 PM
Congratulations Cathy, Thank you for sharing. I'll have a glass of wine and do the happy dance for you. Sincerely Billie
Advanced Member
Posted 22 June 2012 - 09:39 PM
Congratulations, Cathy, I read .0000 as Complete Molecular Remission (CMR) not MMR - that's even better! Did I misread something?
Pat
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
Member
Posted 22 June 2012 - 10:12 PM
Three Cheers!!! That is awesome! Congratulations!
Lori
DX 09-2011 PCR 8.08 not IS WBC 17 , Began Tasigna 600mg
in 2012 Tasigna 450mg/day ,in 2013-2017 Tasigna 300mg/day
DATE/PCR
09-11/ 8.08 not IS
03-12/ 0.054 not IS
06-12/ 0.035 not IS
09-12/ PCRU, 01-13/ PCRU
4-13/ 0.042 IS
7-13/ 0.014 IS
11-13/ PCRU, 04-14/ PCRU
8-14/ 0.006 IS
PCRU: 12-14/ 05-15/ 10-15/ 02-16/
09-16/ 02-17/ 09-17/
10-17 tapered off
11-3-17 Stopped Tasigna
1-15-18 still PCRU
Advanced Member
Posted 22 June 2012 - 10:46 PM
Congratulations!!!! We love to hear Good News like this. Its a fantastic feeling when you get to that point, and you should celebrate for many years.
Susan
Advanced Member
Posted 23 June 2012 - 05:18 AM
Yay! And on a lower dose of Sprycel as well. Another example of personalized dosage showing an optional response. Very happy for you! Here's to many more years of great wine and great health.
Dan - Atlanta, GA
CML CP Diagnosed March 2011
Gleevec 400mg
New Member
Posted 23 June 2012 - 12:21 PM
That's wonderful news Cathy. I hope you continue to do well. Enjoy that glass of wine..and since its summer, maybe turn it into a mimosa ;-)
New Member
Posted 23 June 2012 - 08:49 PM
HI Cathy,
Great news, I'm so happy for you. I am also on 50mg Sprycel, hoping to follow in your footsteps.
Judy
Advanced Member
Posted 24 June 2012 - 09:21 AM
Thank you all again so much. This forum has been such a comfort and educational.
I thought getting to 0.000 was MMR and that was the golden ticket. Is CMR better and actually what I'm at? I thought a 5 log was MMR ? so confusing. LOL
I hope everyone is enjoying the weekend!
Cathy
DX 5-2010 Started normal hydra then Gleevec for 9 months stopped working
Tasigna after 5 pills pancreatis numbers jumped up quickly
Started Sprycel 100, 8-2010 for a 3 years went down to 50 mg numbers at one point really jumped up quickly
currently on 70 mg for last 2-3 years trying to get onc to reduce dose Numbers never stabilize never MMR till 4-2017 bearly and jump up and down in and out of MMR stayed MMR for 3 months then
After 6 years on sprycel fluid on both lungs, drained still have some fluid on lungs, and currently off drug 4 months now
numbers lower then ever go figure I've never been this low of a number
last 2 tests .0686 and .0181 !!
New Member
Posted 24 June 2012 - 07:37 PM
Congratulations Cathy! Gives all the newcomers hope. Thank you for sharing.
New Member
Posted 24 June 2012 - 07:47 PM
At 0.000 you're CMR - Complete Molecular Remission, this is the next step along from MMR - Major Molecular Remission. Better break out those dancing shoes.
Advanced Member
Posted 24 June 2012 - 09:48 PM
CMR (or PCRU) is the best ! Congratulations!
Pat
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
Advanced Member
Posted 24 June 2012 - 10:04 PM
Happy Dance!!!!!!
Advanced Member
Posted 25 June 2012 - 09:24 PM
50mg? I am impressed! Congratulations!
Member
Posted 26 June 2012 - 05:19 AM
Hi Tedsey.. I remember you from my first days on the forum. You are such an inspiration to me!!! Hope you are doing well.
Steve
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