Well, my husband is finally on Gleevek. I posted a while back that we were waiting for his test results and they came in. The Oncologist told us he is in advanced stage-borderline Chronic. I think I read this somewhere before, but I just can't get my head wrapped around it. I guess I am too much of a black or white type person. Anyone ever hear of this before?
The Onc has started him on 400mg and we go back in a month. So far, the only side effects he has faced is the first day he had a short bout of dizziness and has random muscle spasms in high left hand. Other than that, nothing. I know....we are VERY lucky. He has stopped losing weight and although is still slower than his usual self, he seems to be much better. His WBC was back up to 51,000 last week after getting down to 38,000 when he was on the initial dose of Hydro. His WBC was 236,000 at dx.
Really anxious to see if the Gleevek works. It kind of scares me that he has little side effects. I worry that the medication isn't working. I guess we just have to wait, like all of you did (and do). His FISH came back with 91% Leukemic cells. I am waiting for the archiving department to send me a copy of the test so I can see the full results.
Thanks for any input