well i did it i moved from idaho back home to oregon.seen my onc the other day and she said the sprycel is working. now i just hope it continues. i dont want the bmt. i was so glad to hear the sprycel was kicking cmls butt. it was sure kicking mine !!! lol.
Posted 23 April 2012 - 12:47 PM
Good for you Sarah! May it keep on kickin' until the cure!
Posted 23 April 2012 - 09:47 PM
thank you tedsey! glad to see someone cares. my prayer is for all who are fighting this battle to find the courage to continue the fight and never give up NO MATTER what the beast throws at us
Posted 23 April 2012 - 11:41 PM
Hey Sarah, that's great to hear! Have they given you any test results yet? Also, jog my memory - Were you the one with the mds diagnosis as well, or was that another sarah?
Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).
Commenced monthly testing when MR4.0 lost during 2012.
2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)
2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)
2015: <0.01, <0.01, <0.01, 0.013
2014: PCRU, <0.01, <0.01, <0.01, <0.01
2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01
2012: <0.01, <0.01, 0.013, 0.032, 0.021
2011: 38.00, 12.00, 0.14
Posted 24 April 2012 - 10:02 AM
it is me that has the mds along with the cml+ph. i did not get the results as of yet. i had tests done in idaho and repeat of the blood work here in oregon. they did they what i call the special test you know the one they send off. cant remember the name. so now i am doing whhat we all do hurry up and wait. but my oregon onc said it looks really good but it still shows the mds. she said the sprycel is working. as soon as i get the results i will post them
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