Its been a long long while since I have posted here, although I miss and love you guys all, I have had no news for CML in quiet some time. So secretly I wish I was only posting right now about the best of news, like not having to see my Onc for the next 6 months for the first time in 8 years! Unfortunately my news today was with a referral to the head and neck Onc down the hall. After being nearly choked to death and squeezed the H&N has determined the lump under my jaw, and the one to the left (and four more un-know to me) are in fact swollen lymph nodes and we will need to schedule a biopsy to be sure. I'm due back to my least favorite place at Moffiitt to willing let my face be chopped open all in the name of medical whats-a-this-lumpy-thingy. As some of you might know, I have been a Cml'er for the last 8 years and have been in molecular remission since Dec 2009. I'm immune to gleevec (was 800mg and then 600) and am currently on sprycel 100mg. My lump(s) appeared roughly two months ago of which it took me nearly all that time to get someone to refer me to a H&N doctor! Gotta love insurance companies. Anywho, whats a girl to do now with Cml and the possibility of a new DX of Leukemia's BFF Lymphoma too? I have a totally of five lumps starting under my jaw Silvia glad area and running down my neck in "clusters" (as the H&N doc put it) down the left side of my ear/neck. Anyone hear of such a thing with cml? I am aware what we have lymph nodes for but once we determine if they are cancer or not, what on earth do we do about them? Can we just cut them all off and call it a day? Oh if only all cancers were that simple right! lol. I am not going to lie, being Dx with Cml was a walk in the park in comparison of the events in my life that has followed after it, but I am really flipping bricks over the idea of them putting a knife near my face. Crazy right, I mean I let them stab, poke, and prod else where so whats the big deal if they need to cut into my jaw. Id love it if you guys could help me with some questions, the only one Ive compiled so far is if it would effect my Salvatore glads since the one they are taking (I mean literally the whole node) is right under my chin by that gland. I am really stumped about what else I should be asking as this is a whole new thing for me. Shoot any information and love from you guys/gals is always welcome Im not sure if I should be sad due to the bad news or mad that its putting my baby plans on the back burner. Does anyone have a body double I could borrow? This one is just falling apart these days...
forgot to add my Thyroid checked out fine so that is ruled out and counts are still zero across the board