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My cancerversary


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#1 janner25

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Posted 27 October 2011 - 07:45 AM

Well - today is my 1 year 'cancerversary'!  Hard to believe it's been 1 year...somedays it feels like yesterday and other days it feels like an eternity...but such is life.  Next PCR is 11/1 with results on 11/10.  So I will assume that I will be at 0 since my last PCR 6 months ago showed 0.002%.

I am grateful for having CML - it has opened my eyes to what's important.  It is a strange feeling to be grateful for having leukemia...it is a love / hate relationship.  I love that its treatable...I hate how I feel somedays and the back of the brain memory that sneaks up on you when you don't feel well...is this CML or a run of the mill virus?  But the doctor - and my virtual bffs - are just a call or click away.  I'm finding that I am starting to live life more normally - albeit a bit more tired - but is that because of my tasigna or the fact that I'm 37 with 2 young boys (almost 9 and 5) who are active in sports / friends and a husband that's not here during the week because of work.  I could flip the coin on the cause there (although some days are worse than others).

Thanks to all for the last year - funny stories and inspiring ones - and the ability to keep me off the ledge in the earlier months!  I am truly thankful to each one of you - and am looking forward to the day when we can hear about and benefit from a cure!



#2 pammartin

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Posted 27 October 2011 - 09:11 AM

I love your positive attitude, and your outlook on CML.  Congratulations on your first anniversary, and positive results with treatment, many many many more to come!

Enjoy your day

Pam



#3 grannyd

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Posted 27 October 2011 - 10:48 AM

Hi Janner,congrats on your one year cancerversary!!!!! Also for getting back to a {new} more normal life!! It will be a year for me in a couple months. At first the days are soooooo long after being told you have CML but.....looking back does it seem the year has really gone by fast??? I don't know about having little ones around, both my boys are grown, but I know how tired I am, I am  taking tasigna also. So having your little ones to keep up with, all week without help form your hubby, you must be exhausted. I agree with being thankful for the medications to treat CML & all the many supportive people on this board to turn to is a blessing. Congrats again and may you have many many more years to celebrate!!! prayers to you & all, granny d



#4 CallMeLucky

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Posted 27 October 2011 - 11:24 AM

The difference a year can make indeed....It's nice to see you are more at peace with your situation then you were at the beginning and that overall you are adjusting and doing well.  I hope you continue to do well and may you always be at peace with the hand you have been dealt.

All the best.....


Date  -  Lab  -  Scale  -  Drug  -  Dosage MG  - PCR
2010/Jul -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 1.2%
2010/Oct -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.25%
2010/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.367%
2011/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.0081%
2011/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2011/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.00084%
2011/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.004%
2012/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Dec -  MSKCC  -  Non-IS  -  Sprycel  - 100 - 0%
2013/Jan -  Quest  -  IS  -  Sprycel  -  50-60-70  - 0%
2013/Mar -  Quest  -  IS  -  Sprycel  -  60-70  - 0%
2013/Apr -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.036%
2013/May -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.046%
2013/Jun -  Genoptix  -  IS  -  Sprycel  - 50 - 0.0239%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0192%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0034%
2013/Oct -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0054%
2014/Jan -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0093%
2014/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.013%
2014/Apr -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0048%
2014/Jul -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2014/Nov -  Genoptix  -  IS  -  Sprycel  - 100 - 0.047%
2014/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0228%
2016/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Dec - Genoptix  -  IS  -  Sprycel  -  100 - 0%
 

 


#5 CDW

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Posted 27 October 2011 - 05:13 PM

Janner,

Happy anniversary - that may sound odd but I had my one year cancerversary on 25 Oct. I treated it as a celebration because i look at the journey I had this past year. You and i were probably in similar stages of shock and disbelief around the same time. I too have been fortunate on the meds and have similar results to you. So it is a happy anniversary because we are responding well to meds and living our lives after an amount of adjustment to new normal.

Looking for the positive of a rubbish situation, developing CML sharpened my compassion for others an also made me appreciate what is truly important in life.

Happy Anniversary and here's to many more!

Chris



#6 Susan61

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Posted 27 October 2011 - 07:47 PM

Congratulations on your 1 year Cancerversary.  You will have many more years to celebrate. You do have a great Positive Atttude, and it does get you far when you think like that.  Raising two children with your husband away all week with his job has to be rough.  My husband works nightshift, and works every weekend to get the extra money which we need.  I feel like I am alone all the time also, because when he is home he sleeps during the day.  I am not as young as you, therefore, no children to raise.   I can tell your a tough lady just by what you wrote.  Celebrate your great accomplishment.

Susan



#7 Stevo

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Posted 27 October 2011 - 10:14 PM

Congrats again, Janner.

Like everyone here, I struggle with "my attitude" toward cml.  How lucky can we be??

I was recently thinking about what I'll do on my one year ann'y.  (and honestly, I don't know if that was a few hours ago, or a few seconds ago.... whatever.)  The idea of a celebration sounds like a great one!

Your outlook is a great one... thanks for sharing it!

Steve






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