17 replies to this topic

[donnadavis]

After  three  years, three onc.'s, four medications I found out today I am Undetectable!  Thank  you  to  all  the people  who  have  helped  me.   . What a journey!

                                                                                                                                      Donna

[Marnie]

Yea, and congratulations!!  I hope that I will be right there behind you.  2 1/2 years, 3 oncs, and .002  Not there yet, but hopefully following in your footsteps.  PCR test next week or so.

Marnie

[pammartin]

Donna,

Undetectable is an awesome word! Congratulations!  Your story is a great support for us newbies just hitting the CML road.

Thank you for sharing.

Pam

[BPilgrim]

Hi Marnie, I am curious about what lab you have your PCR done at?

.002 is such a sensitive reading, and much better than the lab I use.

Thanks.

[Marnie]

Hi, Pilgrim. . .

Yes. . .PCR results. . .always a frustration!!

My first 2 PCR results were done at genzyme.  Then I switched oncs.  The next few PCRs were done at Quest Diagnostics.  Then (as far as I can tell) the rest were done perhaps at Rocky Mountain Cancer Center (locally), though I'm not absolutely sure about that.  This was with my 2nd onc, who I fired.  Then with my newest onc, they didn't do a PCR, but the BMB was at Children's Hospital in Denver.  Now, because of a change of insurance with my employer (don't even go there), my next PCR will be with a totally different HMO, so I don't know where they will send it.  Gahh!!  However, the majority of my PCRs have been at the same place (unknown, but I think RMCC) and so I can track the trend (I think).  I am really looking forward to January, when I will get a NEW oncologist under my husband's insurance plan and will hopefully be able to stick with him.  I've met with him twice, and he seems very good. . .I am pretty uptight about the upcoming PCR because my previous numbers were pretty darned good. . but since it's a new lab, if it DOES come up PCRU (wishfull thinking, perhaps), I'm not sure how meaningful it will be, since it will be a new lab AGAIN!!

Marnie

P.S.  Sorry for such a lousy answer.  I have seen some folks who have results into 5 decimal places.  Makes my results look pathetic!

[HPL]

What a wonderful result, congratulations. You are a model of perseverance ! Hope you celebrate this achievement.

Hans

Woodinville - WA

[random]

Great news!

Congrats you aetherical been!

[Goldfinger]

Congratulations!!!!!

Steve

[grannyd]

Congrats on your results!!! Best words to hear--UNDETECTABLE!!!!!!!!!

[Pin]

Wow - four different medications, that's incredible and wonderful news, congratulations!

[TroyLynn]

Nice, -0- a beautiful number, congratulations.

[Trey]

You are the poster girl for taking the winding, bumpy road to your destination.  Gleevec, then Tasigna, then Ponatinib trial (kicked off for bad behavior), then Sprycel.  Next time, take along a map.

For all those who ask "Am I doing OK; am I failing TKIs; am I about to...whatever...?" --  look at Donna's history.  You will feel better by comparison.

[Fas]

I am new to the forum, but in reading through this post  I get that you have had quite a journey.  Determination is a powerful force .  Congratulations and many blessings toward your continued wellness.

[hannibellemo]

Congratulations, Donna! That's wonderful news!

Pat

[janne]

Great Job Donna ! Inspiring ! 

[Tedsey]

What great news!  Thanks for giving me hope!  I am almost 2 years in and PCR still relatively high.  Holding with CCyR though!  Congratulations!  So, maybe turtles can also win the race?  Eh?  Clearly!

All the best,

Teds

[Susan61]

Congratulations Donna:  You have certainly gone through a lot to get to Undetectable.  Its good for others to see the different journeys people go through to get there.

Susan