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quiltdiva further update

Started by quiltdiva51 , Oct 13 2011 06:23 PM

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5 replies to this topic

#1 quiltdiva51

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Posted 13 October 2011 - 06:23 PM

Woo hoo, 0% leukemia cells in a BMB last Tuesday! Only my second BMB. Onc called it remission, albeit temporary. My paperwork is now being faxed to our transplant center in town; I hope for an appointment really soon to get the ball rolling on a match. While I am not looking forward to the 30-day ordeal of the transplant, I want this over with and I want my life back to semi-normal, whatever that is.

So, it was a really, really good day!!! Blessings to all who share here. I will keep you updated.

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#2 CallMeLucky

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Posted 13 October 2011 - 06:56 PM

Very good news. Happy to hear this. I hope things continue to move along well. Thanks for keeping us posted.

Date - Lab - Scale - Drug - Dosage MG - PCR

2010/Jul - MSKCC - Non-IS - Gleevec - 400 - 1.2%

2010/Oct - MSKCC - Non-IS - Gleevec - 400 - 0.25%

2010/Dec - MSKCC - Non-IS - Gleevec - 400 - 0.367%

2011/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.0081%

2011/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%

2011/Sep - MSKCC - Non-IS - Gleevec - 400 - 0.00084%

2011/Dec - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.004%

2012/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Sep - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Dec - MSKCC - Non-IS - Sprycel - 100 - 0%

2013/Jan - Quest - IS - Sprycel - 50-60-70 - 0%

2013/Mar - Quest - IS - Sprycel - 60-70 - 0%

2013/Apr - CUMC - Non-IS - Sprycel - 50 - 0.036%

2013/May - CUMC - Non-IS - Sprycel - 50 - 0.046%

2013/Jun - Genoptix - IS - Sprycel - 50 - 0.0239%

2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0192%

2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0034%

2013/Oct - Genoptix - IS - Sprycel - 70 - 0.0054%

2014/Jan - Genoptix - IS - Sprycel - 70 - 0.0093%

2014/Mar - Genoptix - IS - Sprycel - 100 - 0.013%

2014/Apr - Genoptix - IS - Sprycel - 100 - 0.0048%

2014/Jul - Genoptix - IS - Sprycel - 100 - 0%

2014/Nov - Genoptix - IS - Sprycel - 100 - 0.047%

2014/Dec - Genoptix - IS - Sprycel - 100 - 0%

2015/Mar - Genoptix - IS - Sprycel - 100 - 0%

2015/Jun - Genoptix - IS - Sprycel - 100 - 0%

2015/Sep - Genoptix - IS - Sprycel - 100 - 0%

2015/Dec - Genoptix - IS - Sprycel - 100 - 0%

2016/Mar - Genoptix - IS - Sprycel - 100 - 0.0228%

2016/Jun - Genoptix - IS - Sprycel - 100 - 0%

2016/Sep - Genoptix - IS - Sprycel - 100 - 0%

2016/Dec - Genoptix - IS - Sprycel - 100 - 0%

2017/Mar - Genoptix - IS - Sprycel - 100 - 0%

2017/Jun - Genoptix - IS - Sprycel - 100 - 0%

2017/Sep - Genoptix - IS - Sprycel - 100 - 0%

2017/Dec - Genoptix - IS - Sprycel - 100 - 0%

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#3 Marnie

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Posted 13 October 2011 - 07:06 PM

Yea!!! So happy to hear your news. Keep us posted!! Definitely sending good vibes your way.

Marnie

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#4 Pin

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Posted 13 October 2011 - 08:13 PM

That sounds like good news to me - keep it up!

Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).

Commenced monthly testing when MR4.0 lost during 2012.

2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)

2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)

2015: <0.01, <0.01, <0.01, 0.013

2014: PCRU, <0.01, <0.01, <0.01, <0.01

2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01

2012: <0.01, <0.01, 0.013, 0.032, 0.021

2011: 38.00, 12.00, 0.14

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#5 Happycat

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Posted 15 October 2011 - 05:35 PM

Good for you, quiltdiva! So glad to hear it. Been praying for you, Vitamin G and BJ. Hope you continue to do just as well.

Traci

P.S. I'll bet you make some fabulous quilts. I saved my girls baby clothes - the favorites pieces - and plan to make baby quilts for their children some day. (Of course, I first have to learn HOW to quilt!) I just hope the fabric lasts that long. Any idea how I should store it that would help??

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#6 quiltdiva51

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Posted 15 October 2011 - 08:26 PM

Leukemia reply - I have an initial appointment with the transplant center the 24th of Oct. Woo hoo! Going into hospital after for a week of chemo. But that's OK. I will be on the list and in the system. Happy dance! Feeling just fine in this "temporary" remission.

Quilting reply - Store the fabric in fabric, like a pillow case or some fabric bag. Do not store in plastic. The clothes need to be clean, so stains don't grow or mold.

Now, find a sewing or quilting store in your area and sign up for lessons, if you are able. These fabrics would make a great little quilt, but you have a little work to do before you get there. Even if you just pieced the top with the treasured fabrics, you might have someone else quilt for you for a small fee. Best wishes on this project.