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Now my son needs BMB


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#1 grannyd

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Posted 06 October 2011 - 03:50 PM

Hi everyone, been quite a while, been a stressful summer. My son & daughter-in-law delivered a still born baby boy in Aug. spent the month with them & 2 little ones. Then my youngest son that lives 10 minutes away from us did something to his back, went to doctor. Had x-rays & blood work. Long story short, he has low WBC & high RBC.He met with my  oncologist & she did more BW, now he is having BMB Oct. 11th. I am so worried about him & the not knowing is the worst part!!! I am praying it is something treatable or maybe nothing at all serious!!!!!! I had my 3 month PCR test at Cleveland Clinic this Tuesday, waiting for results. In July I was CMR & all my numbers looks good this month but Dr. Advani wants another BMB since it has been 10 months since diagnosis. I am just so stressed out I guess I needed to vent, & for that I am sorry. Thanks to all the great people on this site for listening, such a wonderful group!!!!!! Prayers to all, granny d



#2 CallMeLucky

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Posted 06 October 2011 - 04:16 PM

There is no need to apologize.  This is the place to come and vent, we certainly understand.  First, I am very sorry for the loss.  That must be an awful experience for the parents and I am sure as a grand parent it was very painful for you.  Second, I am sorry to hear about your son, but until there is something definitive try not to let the mind wander too much.  The odds are more likely that it is nothing than it being anything serious so try to keep it out of your mind until you know what he is dealing with.  As for your test results, it gets nerve racking waiting but each time it gets a little easier. I got test results a week or so ago and the waiting wasn't as bad this time.  In my case they were ever so slightly disappointing since I was negative on the PCR last time and this time it came back with a value.  The value is very low and I am not letting it get to me.  I'm suspect your test results will be fine.  You've been a good responder to treatment and it is very likely you will continue to do well.

Try to hang in there and know that you can always come and talk to us.


Date  -  Lab  -  Scale  -  Drug  -  Dosage MG  - PCR
2010/Jul -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 1.2%
2010/Oct -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.25%
2010/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.367%
2011/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.0081%
2011/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2011/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.00084%
2011/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.004%
2012/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Dec -  MSKCC  -  Non-IS  -  Sprycel  - 100 - 0%
2013/Jan -  Quest  -  IS  -  Sprycel  -  50-60-70  - 0%
2013/Mar -  Quest  -  IS  -  Sprycel  -  60-70  - 0%
2013/Apr -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.036%
2013/May -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.046%
2013/Jun -  Genoptix  -  IS  -  Sprycel  - 50 - 0.0239%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0192%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0034%
2013/Oct -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0054%
2014/Jan -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0093%
2014/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.013%
2014/Apr -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0048%
2014/Jul -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2014/Nov -  Genoptix  -  IS  -  Sprycel  - 100 - 0.047%
2014/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0228%
2016/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Dec - Genoptix  -  IS  -  Sprycel  -  100 - 0%
 

 


#3 tranier

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Posted 06 October 2011 - 08:19 PM

You have every right to be having feelings you do!  You have said so many kind things on behalf of BJ..I hope one day we can hook up at Clinic!  I will lift you and family up in prayers!  Stay strong and I hope to hear good news on all fronts!  Keep us posted plz!



#4 grannyd

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Posted 07 October 2011 - 08:53 PM

Thank you Lucky for the encouranging words, I hope it does get easier waiting for results. This time was the worst with all that has happened in the last couple of months!!! But there is always someone worse off & I know I shouldn't complain! You are always so positive when responding to everyone & for that I thank you.

Trainer, thank you so much for thinking & praying for me when you & your family are going thru so much. I pray daily for B.J. & the family to find strenght to continue your up hill battle. What a handsome strong young man, how proud you must be of him. He is such an inspiration to me, the way he handles this is amazing!! Miracles do happen, & B.J. is so blessed to have you as his mother! I will keep praying as everyone on this board has, he is so deserving of nothing less than MIRACLES!!!!!

Prayers to all, granny d






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