Hi everyone...I an new to this site...I was diagnosed with CML February 6, 2004. I have read the discussion boards off and on for years. I originally started with Gleevec which put me into remission within 6 months. In 2007 I became very ill and missed work for 6 months and due to side effects, my hematologist changed my medication to Sprycel. I felt so much better on Sprycel than I did on Gleevec. My concern is I was recently hospitalized for pneumonia and pleural effusion in my right lung. A thoracentesis was performed and they drained 800cc's from my lung (actually from around my lung)...the hospital oncology unit would not dispense my regular dose of Sprycel. I treat with City of Hope in Duarte, CA and they consulted with them and advised me not to restart treatment with Sprycel until I was able to confer with my hematologist (at COH)...he has been out and is not scheduled to return until September 28, 2011. I have been to my pulmonologist and he still hears rattling in my lung so I had another x-ray yesterday. Although the technician couldn't provide me with a diagnosis, she did show me the x-ray on the computer and carefully pointed out how clear the lines were around my left lung and then pointed to my right lung which is NOT clear...I'm thinking there is more fluid. The pulmonologist told me yesterday that if there is additional fluid, he may want to complete a lung biopsy...Not sure I want to do this but...
CAN ANYONE TELL ME IF THEY HAVE EXPERIENCED THIS TYPE OF ISSUE WHILE TAKING SPRYCEL? It is one of the serious side effects but want to know what might happen next in regards to treating my CML? I'm still home recuperating. Thanks to anyone that can provide me with their experience, knowledge or thoughts!