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PCRU!


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#1 Taylor

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Posted 22 September 2011 - 01:06 PM

Hi everyone,

I just wanted to give an update on things.  I got back from the oncologist today; we did a bone marrow biopsy on the 6th of this month to reaffirm my 6-month FISH and PCR back in August, which were FISH negative and 0.003 PCR (3.1xx log reduction), and just check out the state of the marrow.

Anyway, I got the results and I am PCRU!  In just a few weeks between the PCR blood draw and the biopsy, all the evidence is gone.  Marrow looks great as well aside from some somewhat expected fibrous tissue.  I read the biopsy report (grabbed myself a copy) and there were a few things I didn't necessarily recognize, but nothing of concern according to the report.

Tasigna is quite a powerful drug and I'm certainly thankful for all the factors in my life which have helped me through everything that I've been going through.  My onc mentioned the possibility of drug reduction, but he made it clear it wouldn't be just yet by any means, which makes me pretty happy.  I'm not ready to change a good thing yet, obviously; I'm gonna hold onto this for as long as possible.



#2 grannyd

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Posted 22 September 2011 - 02:06 PM

Wonderful news Taylor!!!!!! I am sooooo happy for you! I agree with you, Tasigna has been great for me also! I haven't been on here much, lots going on with my family, but wanted to send congrats to you, you said you was hoping to follow my results and The Lord must have heard you!!! Keep it up, I'm sure you will be getting LOTS of congrats from the great people on this site!!! Prayers to you & all granny d



#3 CallMeLucky

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Posted 22 September 2011 - 03:32 PM

outstanding!  congratulations, may it last and last and last


Date  -  Lab  -  Scale  -  Drug  -  Dosage MG  - PCR
2010/Jul -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 1.2%
2010/Oct -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.25%
2010/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.367%
2011/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.0081%
2011/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2011/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.00084%
2011/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.004%
2012/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Dec -  MSKCC  -  Non-IS  -  Sprycel  - 100 - 0%
2013/Jan -  Quest  -  IS  -  Sprycel  -  50-60-70  - 0%
2013/Mar -  Quest  -  IS  -  Sprycel  -  60-70  - 0%
2013/Apr -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.036%
2013/May -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.046%
2013/Jun -  Genoptix  -  IS  -  Sprycel  - 50 - 0.0239%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0192%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0034%
2013/Oct -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0054%
2014/Jan -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0093%
2014/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.013%
2014/Apr -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0048%
2014/Jul -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2014/Nov -  Genoptix  -  IS  -  Sprycel  - 100 - 0.047%
2014/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0228%
2016/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Dec - Genoptix  -  IS  -  Sprycel  -  100 - 0%
 

 


#4 Susan61

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Posted 22 September 2011 - 04:01 PM

HI:  Congratulations!!!!!!!!!!!!!!!   Its a great feeling to hear PCRU.  You will do well, and have plenty of years to enjoy.  I believe you were planning on your own wedding coming up soon.  I hope those plans are still in place, and you will celebrate many Anniversaries in years to come.  Tasigna seems to be the right choice for you.  Keep us updated on how your doing.

Susan



#5 Tedsey

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Posted 22 September 2011 - 09:47 PM

Congratulations!  Long life to you!

Teds



#6 nathaliece

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Posted 23 September 2011 - 06:26 AM

Congratulations!  I, like many others, hope to join your club soon!

Nat



#7 HeatherZ

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Posted 23 September 2011 - 07:22 AM

Congrats to you!  Hopefully one day I will be able to join you in the club.

Heather



#8 BigAl

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Posted 24 September 2011 - 02:17 PM

Congrats



#9 hannibellemo

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Posted 24 September 2011 - 04:49 PM

Fantastic news, Taylor! Here's to a lifetime more of the same!

Pat


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>





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