It's been smooth sailing for me so far on Gleevec 400mg (5% FISH @ 3 mos and rapidly decreasing PCR) with the 6 month PB blood draw coming in three weeks. My body feels great and I have been running & working out steadily ... I might even be in the best shape I've been since college. Amazing what a chronic cancer diagnosis will do to your fitness priorities. And this board -- as always, I just can't say enough about the amazing support this group of folks is.
Anyway, I had really hoped and prayed that I wouldn't need to visit the onc prior to my late-Oct appointment, but here I am on 9/22 (CML Awareness Day) leaving a message for my onc to try and get in for a check as soon as possible. In the past 3 to 4 days, I have developed a swollen lymph node on the left and right side of my neck (a little more pronounced on one side). Throat's a bit red (not sore though), but I went to my primary care doc yesterday and was strep negative ... and he didn't seem concerned. He wrote me a Z-Pack antibiotic prescription as a precaution (which I have not filled yet, cause it doesn't appear to be strep). I don't appear to have swollen lymph nodes anywhere else.
I've been following our various group threads on CML progression/morphing and such, so obviously I'm concerned that something could be up. I've been a bit short on sleep here & there with some heavy work travel and a couple of red-eye flights over the past couple of weeks (ouch), but other than that, I feel terrific. My kids are back in school and all kinds of fun stuff's been going around (my youngest had strep last week), so I am certainly hoping that's all it is.
Any of you all gotten swollen neck lymph nodes while on treatment ... from just the real life situation of infection? If so, how long does it usually take for the swelling to go away?
What does an onc look for to decide if it could be more serious and warranted for a BMB? High lymphocyte count/%-age on the CBC?