okay.So most of you know about the severe pain I've been having in my limbs, and the fact I even had to go to the ER for it. I put up a post awhile back about the side effects for Gleevec since I read that the pain is called bone pain and it';s listed as a side effect of Gleevec.. Now here's where things get very interesting..
.so went to my Oncologist and his reaction to everything was quite shocking to say the least. He not only refused to give me anything for my pain I've been having in the limbs..but accused me of being suggestive to things I'm reading on the internet and said that Gleevec doesn't cause any type of bone pain, especially the kind I'm describing. I then told him I hadn't even looked up the side effects until AFTER I started experiencing the digestive/bathroom problems and the severe limb pain. He said , that he had never heard of Gleevec causing these side effects and that there was nothing he could do for me. They took my blood, my $30 co pay, and said if my molecular tests comeback good then I don't have to see him for another 3 months.
He actually seemed shocked when I said how much pain I was in, and the idea that it was the Gleevec shocked him. I couldn't believe this was happening. He actually accused me of being very suggestive to other peoples influence, especially with my diagnosis. But the fact that he seemed angry even insulted when I asked about switching to a different medicine besides Gleevec, caught me off guard. I mean he's an Oncologist..I'm sure other patients that have been on Gleevec ave discussed their side effects with him. And everyone says how wonderful he is but both my boyfriend and I each saw a totally different side of him. Now I still have trouble getting around, It hurts so bad I cry, and my Dr. is a complete wack a do anytime you bring up the side effects. And the fact that he said Gleevec doesn't cause these effects..when I started having the pain I looked up the side effects and bone pain was right there in black and white..
So now what do I do? He's only run the blood tests so far..no marrow aspirations, nor do I think he will ever do any. And after the way he behaved I really don't feel comfortable seeing him again. should I report him for the way I was treated? Who would I even report him to? And is that a justifiable enough excuse to find a different Oncologist? Any advice would help!