My very first onc. left the clinic I was seeing so I started seeing someone else. He did my 6 mo bmb where it was found that I had 2/20 cytogenetics. I called yesterday to set up my 9 mo. fish/pcr or bone marrow. He told me that he would NOT check on the status of my disease until 12 months......He also said that FISH was the most sensitive test and that doing one would be pointless until I've reached 0 on the BMB. This guy clearly isn't up to date on the guidelines or trends in the treatment of this disease. He also doesn't know which tests to run and when? It's so frustrating to be a patient that knows more than the onc. I think waiting 6 months between tests for someone who hasn't yet reached CCyR is a little risky? Don't you? I told him I would like I new oncologist. Do you think I went too far?
Broke up with my onc.....
Posted 15 September 2011 - 09:03 PM
Soudns like you made the right call. He is not following standard guidelines for care.
Posted 16 September 2011 - 06:06 AM
Very smart move! He isn't competent to treat CML and you knew that. Move on and don't bother looking back.
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
Posted 16 September 2011 - 09:13 AM
Bad oncs are worse than bad girlfriends. Dump them, move on, then post all the dirt on the internet.
Conflagrare melius quam evanescere
Posted 16 September 2011 - 03:13 PM
I had to do the same thing at 4 months into my treatment. It was the best move for me and my less is much less stressful now that I know I am being treated by a CML expert. Good luck!
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