4 replies to this topic

[JoshLee]

My very first onc. left the clinic I was seeing so I started seeing someone else. He did my 6 mo bmb where it was found that I had 2/20 cytogenetics. I called yesterday to set up my 9 mo. fish/pcr or bone marrow. He told me that he would NOT check on the status of my disease until 12 months......He also said that FISH was the most sensitive test and that doing one would be pointless until I've reached 0 on the BMB. This guy clearly isn't up to date on the guidelines or trends in the treatment of this disease. He also doesn't know which tests to run and when? It's so frustrating to be a patient that knows more than the onc. I think waiting 6 months between tests for someone who hasn't yet reached CCyR is a little risky? Don't you? I told him I would like I new oncologist. Do you think I went too far?

[CallMeLucky]

Soudns like you made the right call.  He is not following standard guidelines for care.

[hannibellemo]

Josh,

Very smart move! He isn't competent to treat CML and you knew that. Move on and don't bother looking back.

Pat

[gunner]

Bad oncs are worse than bad girlfriends. Dump them, move on, then post all the dirt on the internet.

Conflagrare melius quam evanescere

[nathaliece]

Josh,

I had to do the same thing at 4 months into my treatment.  It was the best move for me and my less is much less stressful now that I know I am being treated by a CML expert.  Good luck!

Nat