I'm a 47 year old male, and was diagnosed with CML nine months ago. After spending a few minutes reading this forum today, I realize that I probably don't know as much about what exactly is going on with my CML as I should... pretty much been trusting my onc to take care of me... and so far, pretty much so good.
Onc has been vigilent in bloodtests, ekg and chest xrays, with only positive news. Therefore, I have really only paid attention to bloodtests, in which the lab shows the acceptable range (easy to read)... and those look good... onc seems very happy with results... like a few episodes of him being on the verge of estatic. Blood looked closed to normal in 45 days. Results from BCR-ABL about 3 weeks ago was "still improving, looks good." Now I realize that I should insist on knowing the numbers... I'll get those this week from him.
Mostly, I've done my best to ignore my CML, let the doc handle the details. Maybe not the best route.
Few side effects, but nothing that has directly slowed me down. BUT...
About a month ago I started noticing pain in my upper left abdomen. Not always... but it's there. Onc had a CT scan performed... everything looks normal on the scan. Hence, my taking the time to visit this forum... as I wonder if "is this pain is a side effect from Sprycel?"
I drink too much alcohol. Too often.
So I'm wondering if the Sprycel, the alcohol, and/or the combination of the two is causing this pain, possible in my liver.
I've taken efforts to drink less, and I know that seems to be the simple and obvious answer... and I plan to continue to do so... easier said than done though.
No real question here, just posting my situation to see what feedback I might get.
Ever have the feeling, "just shoot me now"? I guess I have it too often, and wash it away it with a beer or six.