Advanced Member
Posted 09 September 2011 - 10:39 AM
Good Morning all,
Great news! I finally after 16 months of 3 medicines, problems, problems, problems, I have reached Fish 0 ! Which is Cccyr correct!
So I'm looking to celebrate!
Thank you all for your support, and I wish you (us) all good health! Yippee
Cathy
Cathy
DX 5-2010 Started normal hydra then Gleevec for 9 months stopped working
Tasigna after 5 pills pancreatis numbers jumped up quickly
Started Sprycel 100, 8-2010 for a 3 years went down to 50 mg numbers at one point really jumped up quickly
currently on 70 mg for last 2-3 years trying to get onc to reduce dose Numbers never stabilize never MMR till 4-2017 bearly and jump up and down in and out of MMR stayed MMR for 3 months then
After 6 years on sprycel fluid on both lungs, drained still have some fluid on lungs, and currently off drug 4 months now
numbers lower then ever go figure I've never been this low of a number
last 2 tests .0686 and .0181 !!
Advanced Member
Posted 09 September 2011 - 11:44 AM
Outstanding, negative FISH is Complete Cytogenetic Response (CCyR) and is one of the most important milestones when looking at overall survival.
Definitely something to celebrate.
Congratulations....
New Member
Posted 09 September 2011 - 12:03 PM
congrats! I always use good results as an excuse for one extra glass of wine
New Member
Posted 09 September 2011 - 12:11 PM
here here! that is WONDERFUL news, Cathy! I wish you continued success with the new therapy 
It's so great that we have so many options now.
Advanced Member
Posted 09 September 2011 - 12:21 PM
Thank you all,
I do plan to have a glass of wine to celebrate and actually I have a beer cruise I'm going on tomorrow with girlfriends. We all plan on celebrating. Well its a good excuse anyway!
I'm happy! Wasn't so sure I was going to get there! R E L I E F ......
Cathy
DX 5-2010 Started normal hydra then Gleevec for 9 months stopped working
Tasigna after 5 pills pancreatis numbers jumped up quickly
Started Sprycel 100, 8-2010 for a 3 years went down to 50 mg numbers at one point really jumped up quickly
currently on 70 mg for last 2-3 years trying to get onc to reduce dose Numbers never stabilize never MMR till 4-2017 bearly and jump up and down in and out of MMR stayed MMR for 3 months then
After 6 years on sprycel fluid on both lungs, drained still have some fluid on lungs, and currently off drug 4 months now
numbers lower then ever go figure I've never been this low of a number
last 2 tests .0686 and .0181 !!
Advanced Member
Posted 09 September 2011 - 01:36 PM
HI: You go celebate every step you achieve to getting to PCRU, and better yet cured. Enjoy your fun time with your friends. Its a great feeling when you get that kind of result.
Susan
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