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#1 Marnie

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Posted 10 August 2011 - 09:30 PM

So you guys have all freaked me out a bit.  I have a BMB scheduled for the end of the month.  On my other BMB, I didn't have any sedation (other than lidocane), and I don't remember it being much of an ordeal.  It was uncomfortable, but I tolerated it.  I was a long-distance runner with a very high pain-tolerance for most of my life, and maybe that helped.

BUT. . .lately  it seems like I've heard lots of folks talk about how awful theirs were (and not just Tedsey. .. and that one sounds like it was quite exceptional).  So some questions. . .

1) If the first one was o.k. is that what I should expect from the next one?

2) If I have sedation, can I drive myself home or do I need a driver?

3) Am I just being a baby?

4) Am I being stupid to even think about doing a second one with no sedation?

I'm planning on getting a crown put on two days afterward. . .is that a bad idea?

Hmmm. . .I guess that's it.

Thanks a lot, for all of your horror stories.  They have not been very helpful here!

Marnie

And, Trey. . .just for clarification. . .the crown is going on my tooth, not my head.



#2 jenz

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Posted 10 August 2011 - 09:45 PM

Marnie,

You are not a baby at all.  I always get worked up as it gets close to the time for my bmbx.  My 5th bmbx is scheduled at the end of the month and I can already tell it is moving from the back of my mind to the front.  I think about it a lot and get myself all into a frenzy before the actual procedure.  But I find that I have a routine now that seems to work for me.  I too have never had sedation as most places U. of Chicago included do not do it in the clinic.  I would assume you would require a driver if you decide to have sedation.

My routine is, I take 1 mg of Ativan on the way to the bmbx appointment then take a second 1 mg when I arrive at the clinic.  The ativan is a relaxant and typically by the time I am in the room for the bmbx I am relaxed.  While the procedure is going on I find listening ot music calms me down even more.  On a funny note I don't take headphones to the appointment and listen to the music loud in the room.  The physicans assistant who has done 4/5 of my bmbx's and is amazing loves the music.  For me its all about finding a good PA and sticking with them.  So I personally request the same person to do each bmbx now that I have a good one.

When I take ativan, I cannot drive when so I require someone to always go with me for this reason.  But last time I just took 1 mg and not 2 and it still worked well for me.  For me it makes me kind of tired so by the time the procedure is done all I want to do is take a nap. Don't get too worked up about your bmbx.  I know it is easier said that done and don't be embarrassed to ask your doctor for something to relax you as it might really help.

Make sure to share your results! Good luck

Jen



#3 Trey

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Posted 10 August 2011 - 10:17 PM

Marnie, Your Royal Highness,

You cannot get a snort of Versed and ride your bike home in the Republic of Central Colorado without a police escort.  Even if you are crowned "Queen for a Day".

http://www.youtube.c...h?v=ggV8Uwhnmq8



#4 Lodie

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Posted 10 August 2011 - 10:28 PM

Good questions, Marnie!  I am going to be watching the replies to this one. 

I have my 2nd BMB scheduled for Monday.  My first was with lidocaine only, and although it wasn't fun, it wasn't horrible either.  This time I will be having it done at Mayo Clinic instead of my local hospital and they offer sedation.  I would love to take it, but I am scheduled to see a geneticist about four hours after the BMB and I don't know if I would still be too loopy to get anything out of the appt. with the geneticist.  Therefore, I am thinking of going lidocaine-only again this time.

What to do... what to do!


~ Laurie


#5 momruns

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Posted 11 August 2011 - 02:29 PM

Hi,

My first BMB was along with a bone biopsy and that part hurt but I had no sedation just a little lidocaine and went to work right after.  I am a nurse in an operating room and work 8-12 hours a day.  I had a second BMB and that one was only for the marrow and he numbed me and I did not hurt but my hip has hurt for the past 7 days and I know it will pass.  I too have been a long distance runner for 25 years and don't know if that has anything to do with it.  Now put me in a dentist chair and I am beyond stressed!!!!  So I guess everyone handles stress and pain differently.  As for this week I worked monday and stood from 7am till 8pm and stood most of those hours then I got nailed again yesterday with basically the same doctor and same type of cases.  Were I work they are nice and let me out early today, so I took a nap haha.  Stay stong.

Loreta



#6 Tedsey

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Posted 11 August 2011 - 03:01 PM

Sorry Marnie!  Just understand that my experience had to be rare.  I had to complain.  I have always been fine with just lidocaine.  This was my 4th BMB and they have all been different (this was the only so called "bad" one).  Usually the healing is worse than the procedure for me.  However, this time, I ran around the day after and I am still running.  Like you, I refuse to let this crappy disease stand in the way of my life!  I think you can expect it to be about the same as the last, esp. if the same person is doing it.  My onc is usually very competent.

You will not be able to drive after sedation.  AND you are not a baby!  Who wouldn't be squeamish about the procedure?  Send me your address, I will send you my crown.  Three days post BMB, I probably don't need it anymore.

    

Have you seen the movie Seven Pounds with Will Smith?  I got a chance to watch my first movie of the year a couple nights ago.  I won't critique the movie, but there was a scene where he donated his bone marrow (without any numbing or sedation).  Oh boy.  What a mockery of we who use lidocaine.  I guess I should have been a "real man" and asked them to give me nothing.  But then I couldn't complain, right?  But what made me a bit perturbed was how they showed the big huge needle full of blood in his back and him squirming and groaning in the foreground.  What a way to turn people off to donating bone marrow.  They don't even do it that way most of the time, if not all of the time, today.  A little blow for us.  But I don't think the movie did extremely well at the box office.  Phew.

Hang in there.  I totally get the anxiety that builds up before the procedure.  Been there.  Done that!

Good luck and keep us posted.  Hope all goes smoothly.

Teds

P.S.  Next time, I think I will take the nurse up on a little Margarita with my lidocaine.  



#7 CallMeLucky

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Posted 11 August 2011 - 05:28 PM

I did my first one without sedation, just the local and it was uncomfortable but not that bad.  I then did my second one same as the first, no sedation, just the local, slightly less discomfort when they did it, but more soreness after the fact than the first time.

I'm of the mind set that I like to get in, get it over with and get out.  I'm not a tough guy and I know different people have different sensitivity to different things.  My feeling is that if you did it the first time and it wasn't that bad, you will likely have the same experience this time.

If you get the sedation, it is probably a good idea to get someone to take you.  In fact it's probably a good idea either way if you can swing it.  I went by myself the first time, but that was the local hospital, only a few miles from home and I was in shock from the diagnosis so kind of numb anyway.  The second time I had someone take me.  Cancer center is about 50+miles and figured it would be a long drive.  It was a good thing because as I mentioned, while the actual procedure wasn't bad, I was pretty sore afterwards and was not in the mood to drive.


Date  -  Lab  -  Scale  -  Drug  -  Dosage MG  - PCR
2010/Jul -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 1.2%
2010/Oct -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.25%
2010/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.367%
2011/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.0081%
2011/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2011/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.00084%
2011/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.004%
2012/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Dec -  MSKCC  -  Non-IS  -  Sprycel  - 100 - 0%
2013/Jan -  Quest  -  IS  -  Sprycel  -  50-60-70  - 0%
2013/Mar -  Quest  -  IS  -  Sprycel  -  60-70  - 0%
2013/Apr -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.036%
2013/May -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.046%
2013/Jun -  Genoptix  -  IS  -  Sprycel  - 50 - 0.0239%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0192%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0034%
2013/Oct -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0054%
2014/Jan -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0093%
2014/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.013%
2014/Apr -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0048%
2014/Jul -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2014/Nov -  Genoptix  -  IS  -  Sprycel  - 100 - 0.047%
2014/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0228%
2016/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Dec - Genoptix  -  IS  -  Sprycel  -  100 - 0%
 

 


#8 Marnie

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Posted 11 August 2011 - 06:20 PM

O.k.  whew. . .I feel better now.  I guess I'll go with just the lidocaine.  Last time I drove the car and, frankly, that was more uncomfortable than on the bike.  On the bike, there's nothing back there to be leaning against. . .so.. .hmmm. . .maybe I'll take the bike this time.  Thanks for the idea, Trey!

Now I need to decide if I'm going to take the  whole day afterward off, or just the afternoon off, since I have a consult with the new Kaiser doc in the p.m. (so that I can get the September prescription of meds).  I hadn't intended to take time off the next day, but that might be a good idea.  The first BMB was done during summer vacation, so much easier.  I can't remember how sore I was. . .I guess thinking back, I was pretty tender for quite awhile.  Would be hard to have a desk job, I would think.  I'm on my feet all day, so while I'm pretty pooped by the time I get home, at least I don't have to be leaning against a chairback.

Gotta head out to pick up dinner.  I decided that since I'm queen for a day, I would let someone else do the cooking.

Cheers. . .

Marnie



#9 Marnie

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Posted 11 August 2011 - 08:52 PM

I just watched the Queen for a Day clip. . .that's hilarious.  Watch the little girl's eyeballs in the Rinse Away commertial.  Too funny.



#10 hannibellemo

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Posted 12 August 2011 - 08:12 PM

Laurie Ann,

You should be fine! I see my doctor generally within 2 hours after my BMB. Those guys at Mayo are really good when it comes to propofol and fentanyl.

Good luck,

Pat


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>


#11 Guest_billronm_*

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Posted 13 August 2011 - 05:51 PM

Hi Marnie,

  I do declare you were BORN TO BE WILD. If anyone wants to do anything to my ass I better be sound asleep,take a pillow to the dentist with you.Any whips,chains,or leather hid in your closet? I heard rumors about you school marms.      lol Billie

whoops forget about that second sentence---typo



#12 LoriM58

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Posted 14 August 2011 - 05:26 PM

Marnie/Trey - thanks for the laugh about the crown!!   You SHOULD be Queen for a day!

I have my 2nd bmbx scheduled tues afternoon and took wed off also (desk job).   I have a pretty high tolerance for pain but am getting anxious about this one.   Maybe more about the results than the actual procedure, but I did get Ativan to take.       it has been 6 mos since dx and 1st bmb (on Gleevec for 5 mos now), what should I be praying for in my results?    I reached CHR at 2 mos, so am I being too hopeful to think I may have reached CCYR?   (I think that is the next "goal"?)  all of these numbers really confuse me.......

LOVE this site and all your input - THANKS!!

Lori



#13 LoriM58

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Posted 14 August 2011 - 05:27 PM

lol at me!    numbers AND letters confuse me.........



#14 Marnie

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Posted 14 August 2011 - 09:08 PM

Hey, Billie. . .bringing a pillow to the dentist's office sounds like a pretty good idea.  I think I may do that (seriously).  I wonder if I should strap a pillow to the motorcycle seat for the ride home from the BMB.  Now that would look a bit strange.  .  .



#15 Guest_billronm_*

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Posted 14 August 2011 - 09:28 PM

Marnie,

You have a moose and a Buffalo and God knows what else is in those saddlebags people will think you're leading a circus. Just have your wine ready that's going to be a long day. I never did see anyone riding a bike standing up. What ever works.  If it can be done I'm sure you have tried it. You wild woman.

                                                                                                            lol Billie



#16 Lodie

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Posted 18 August 2011 - 06:37 PM

Pat -

You were right!  Those Mayo guys really do know their sleepy drugs!  Being put out was way better than being awake for the BMB.  I am really amazed how quickly I came out of it, too.  They did not even give me an option... they just told me "this is how we are going to do this", which is a good thing because I had decided to rough it out with just lidocaine.  I seriously recommend getting knocked out to anyone.  It really is worth it. (As long as you don't have anesthesia issues, of course.)  Never again will I try to rough it out with just lidocaine.

Laurie


~ Laurie


#17 Marnie

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Posted 18 August 2011 - 08:04 PM

LaurieAnn!!!

Argghh!!  I had just gotten comfortable with the idea of no sedation (so I could ride the motorcycle to the appt).  You were NOT supposed to post that!

Hubby decided he'd come along this time to see my butt get drilled.  Wonder if the doc will get freaked out if I ask the hubby to take pictures. . .  Last time I just remember the doc walking away while the big old hand drill was sticking up out of my behind.  Felt awfully weird, so I said, "gee. . it feels like that's just sticking up out of my butt."  Doc's reply. ."yep, it pretty much is!!"

I decided to take the whole day off afterward. . .have an afternoon appointment with my new (interim) oncologist.  Then the following day is a dental appt to get a crown, so I think I'll probably take Billie's advice and bring a pillow to the dentist's office.



#18 Lodie

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Posted 18 August 2011 - 08:31 PM

So sorry, Marnie!

But, it is true.  Also, judging by the way that I felt after both BMB's I've had (one sedated, one not), I don't think I would want to be riding a motorcycle home.  Actually, I KNOW I wouldn't want to ride a motorcycle home. Quite sore for the rest of the day, but the next day was WAY better.  Good enough to where an eight hour drive home from Mayo Clinic did not bother me so a couple-hour ride in a dentist chair shouldn't be too much of a problem!

I was all set to do this one without sedation.  In fact, the idea of sedation scared me more than the idea of a BMB.  But, since I was not given an option, Mayo Clinic totally changed my mind for me.  It really is a walk in the park to do the sedation route.  So worth it!!!  Could I do it again without sedation?  Sure, and I would give a high-five to anyone who felt they would rather go that way.  But for me... give me the drugs from here on out!


~ Laurie


#19 Marnie

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Posted 18 August 2011 - 08:39 PM

Well. . .I have about a 15 minute drive home. . .a bit different than 8 hours!  That would be awful.  I remember driving home and it was quite tender, but the next day on the motorcycle, I remember thinking that since I wasn't bumped up against the seatback, it was pretty comfortable.  However. . .maybe I dreamed it all.  Hmmm. . .definitely need to think about this.  Especially as hubby is coming along.  There's my driver if I need one.  Wasn't planning on that, so I figured since I'd be doing the driving, and couldn't do sedation, I might as well have fun with the bike.



#20 Lodie

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Posted 18 August 2011 - 08:48 PM

For the first 30 minutes or so after I woke up... I don't think I've ever been happier!  That alone made the sedation the better way to go!


~ Laurie





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