34 replies to this topic

[GerryL]

Hi Stevea,

I was a bit the same - I switched to taking my Gleevec in the morning as I was finding it difficult trying to eat a reasonable meal at night time so I could have my Gleevec. I didn't put any weight on, but didn't always feel like eating a lot at night particularly when I'd had a large lunch.

Gerry

[ADCARSON]

Thanks Stevea for the info.  That is what I have been doing is taking it with dinner and eating more because if I do not I feel sick.  Recently had to increase my dose so still getting ised to it.  Once I get more used to it I am going to try taking it at lunch and eating a lighter dinner.  In addition to exercising more...........combination is sure worth a try.     Anita

[carrie]

Yep. CML and Gleevec for four years now. Gained weight...30 or 40 not really sure about the exact amount.

For the first time in my life I cut out sugars, bad carbs,...and I am trying to get on a treadmill at least 20 minutes

a day. Started this about 4 months ago and I have lost about 25 pounds but it is slow going. I am not cheating

at all. From everything I have read...Gleevec puts on the pounds.

I used to have so much diarrhea I thought that would help keep the weight off...liquid out/pounds off....not a chance.

I did stop eating eggs for breakfast and replaced it with oatmeal and my diarrhea is NO MORE.

Now I just have to work at getting those pounds off. I was NOT thin to begin with so I have lots of work to do.

[ADCARSON]

Hi Carrie,

Thanks for your feedback.  I know wht you mean,  Sounds like you are doing it the right way.  Removing the bad carbs certainly is key.  I was doing that a few months ago and lost 7 pounds.  Problem is that I did not stick with it as I should.  I am going to get motivated again to get back on track.   I am still battling with the diarreah....you are right, I thought the same thing...surely I would loose weight because of it....not a chance.

Good luck getting to your goal and keep me posted.  You are an inspiration.

Anita

[ADCARSON]

Ha ha...thanks Billie.  And men sure can loose weight a lot faster than us women can.....just not fair.

[VickiW]

oh yea, you betcha.  Worse since the neuropathy worsened forcing me to go on neurontin which is known to cause weight gain!  Put on thirty pounds my first year on Gleevec, managed to get half of it off and keep it off until I switched to Sprycel then went on neurontin.  I've been battling to lose that again, plus another 10 I put on, just to have it jump right back onto my hips.  I have finally surrendered and just sent all my "skinny" jeans to the charity store and resigned to the battle of not gaining any more.

[Pin]

I'm fighting very hard not to - but my body is fighting me back. Mostly with sugar cravings, which is new for me - normally I used to just crave chocolate, but now all kinds of sweet things as well. I wonder if it has anything to do with blood sugar levels?

[VickiW]

OH SHOOT!  Oh well, knew you would find me sooner or later (hehehehe).

Hi Billie!  Just been busy with my gardens this summer.  In fact, I have a huge bushel of beans sitting on my kitchen floor right now waiting for me to get busy.  Glad to hear they finally found the reason for why you haven't been feeling well.  Good for you for pushing and not taking "no problems" for an answer!!! 

Personally, except for the weight gain, I've had the best summer in years.  Only have problems when I think I don't need to take the Neurontin (I hate the idea I need ANOTHER drug).  I've got a pretty good handle on my new "normal" and it's one I can actually live with (pun intended ) with a little help from my wonderful better half.

Ok, I have to get busy and snap my beans.  Glad you found me!

Vicki

[dee145]

After finding a good oncoligist that knows how to treat me I have gained some weight but I mostly mind it around my belly, I look bloated all the time and it's not fluid.  I am 5 ft tall and weigh 140, never weighed that much when I was 9 months pregnant.

My new issue is they found a large mass on my left ovary, so now I have to see the gynocoligist tomorrow.  I just found out last night and they got me in quick so it kind of worries me.  If they have to take out the ovary I want it all out.  Thats 1 less thing to take a risk of getting cancer at.  Don't know if they will or not, insurance may refuse.

To the people on here that know about my anxiety problems I can say they are getting a little better, well till last nite, I was put on a pill called Buspar thats not addicting but still have to take a couple xanax a day depending on what goes on or just my anxiety level.  I went on vacation again and had a good time, alot slower than the rest but I did it.  I dread the cold weather cause I do better in hot weather.

          Well, thats whats going on with me and any ideas on the bloating I would love to hear!!!!     Dee

[Susan61]

Hi Dee:  The Mass they found on your ovary is most likely causing the bloating that you describe.  I hope all goes well for you with your further treatment for your ovary.  Please let us know how your doing.  My prayers go out for you that it might just be a large cyst.

Susan

[Happycat]

Dee,

I hope it is just a cyst and nothing worse than that.  Let us know and try not to worry too much.  Easier said than done.

My sister once had a lot of problems with her ovaries.  Can't remember if bloating was one of the symptoms.  But she ended up being rushed into emergency surgery after passing out at work one day.  She just turned all bluish-white and passed out.  Turns out she had a cyst on her ovary that had become septic.  The docs saw the cyst on the ultrasound and expected they would find cancer when they opened her up to check it out.  But it turned out to be a very nasty little cyst.

Traci