Its been awhile since I posted on this board, I have transitioned over to the stem cell board. I am getting ready to go in at the end of the month pending no problems occur with my pre-admission testing. So far, my pulmonary test came back good, my muga scan shows 60% pumping rate for my heart which is good, just waiting on the blood work to see how my other organs are functiong and making sure no viruses are sitting in my system. They have located a 10/10 match for me and the nerves are high but I am confident this will work out for the best. As some of you may know, I was unable to stay on any of the current TKI's due to long low counts and severe thyromcompentia (low platelets) where I had to take 2 and 3 months breaks from my treatment. I know, I misspelled the fancy word for low platelets. I reached CHR in 6 months but still have 100% Ph+ but read a very low PCR. CML acts so differently it seems from person to person but maintains the same general concepts if that makes any sense? I just did my 4th BMB on Friday and I pray that I am still in chronic phase as my report stated in Mid-April of this year.
Please think of me and keep me in your prayers as I begin this journey. My blood type will change to A+ where I am currently B+. My donor is a 18 yr old female and both of my siblings were only a 5/10 match. I hate being too positive, I am very superstitous right now after reading so many success and devestating stories on various boards.