New Member
Posted 01 August 2011 - 09:55 AM
My wife and I just had a baby on 7/23!!! She was 8lbs 13 oz, 21.25 inches long and most importantly healthy.
The doctors were aware of my condition and medication. Surprisingly (or maybe not so surprisingly) they have had experience with other babies from CML fathers.
I am about a month away from my 2 year diagnosis anniversary. We were trying to get pregnant before I was diagnosed, after that we put away the thought of having a baby.
Now if you will excuse me I have a diaper to change...
New Member
Posted 01 August 2011 - 10:27 AM
Wooooooohoooo! CONGRATULATIONS!!!!!! Thank God for our good meds...YOU will live to see her grow up! ENJOY, Lala
Advanced Member
Posted 01 August 2011 - 11:10 AM
Congradulations! Enjoy your daughter! What wonderful news!
Cathy
Cathy
DX 5-2010 Started normal hydra then Gleevec for 9 months stopped working
Tasigna after 5 pills pancreatis numbers jumped up quickly
Started Sprycel 100, 8-2010 for a 3 years went down to 50 mg numbers at one point really jumped up quickly
currently on 70 mg for last 2-3 years trying to get onc to reduce dose Numbers never stabilize never MMR till 4-2017 bearly and jump up and down in and out of MMR stayed MMR for 3 months then
After 6 years on sprycel fluid on both lungs, drained still have some fluid on lungs, and currently off drug 4 months now
numbers lower then ever go figure I've never been this low of a number
last 2 tests .0686 and .0181 !!
Member
Posted 01 August 2011 - 11:30 AM
Wow, love good news! Congrats, hug your baby and change that diaper!
New Member
Posted 01 August 2011 - 11:56 AM
Congratulatuions on the new addition to your family!!!! That is wonderful!! By the way, what did you name her????
New Member
Posted 01 August 2011 - 12:28 PM
Fantastic news - Congratulations to you adn your new family.
Advanced Member
Posted 01 August 2011 - 12:38 PM
God Bless All Of You. What a nice size baby, and best of all healthy. Enjoy her to the fullest, because they grow so fast. The good thing is you will be here to watch it all happen, and share many years with her in the future.
Susan 61
Advanced Member
Posted 01 August 2011 - 01:18 PM
That is so awesome, congratulations. Enjoy every moment with her.....
Advanced Member
Posted 01 August 2011 - 03:47 PM
Congrats and best wishes to your family!!
Marnie
Advanced Member
Posted 01 August 2011 - 04:14 PM
Congratulations on your new daughter!
New Member
Posted 01 August 2011 - 06:52 PM
Yeah!!!! Welcome to the world - and congratulations! Enjoy!
New Member
Posted 01 August 2011 - 07:20 PM
How wonderful you the two of you. My children are 25 and 27. Enjoy....enjoy....enjoy. What is the little ones name, lots of hair, etc...This news lifted my spirit, thank you
Loreta
Advanced Member
Posted 01 August 2011 - 07:22 PM
Jamar,
That is the best news I've had all day! Now you have really have something to blame your "fatigue" on - for the next 21 years! Congratulations to all of you!
Pat
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
Advanced Member
Posted 01 August 2011 - 07:37 PM
Now there are 2 sharting people in the house. One can fill their pants anytime they please without social stigma. Life is just not fair.
Advanced Member
Posted 01 August 2011 - 08:12 PM
Congratulations!!!!! We were trying to get pregnant too when I was diagnosed which makes me extra happy for you.
Dx Dec 2010 @37
2x IVF egg collection
Glivec 600 & 800mg
PCRU March 2012
Unsuccessful pregnancy attempt - relapsed, 3 months interferon (intron A), bad side effects from interferon
Nilotinib 600mg Oct 2012
PCRU April 2013, 2 years MR4.5 mostly PCRU with a few blips
April 2015 stopped again for pregnancy attempt (donor egg), pregnant first transfer, 0.110 at 10wks, 2.1 at 14wks, 4.2 at 16wks, started interferon, slow dose increase to 25MIU per wk, at full dose PCR< 1 for remainder of pregnancy
Healthy baby girl Jan 2016, breastfed one month
Nilotinib 600mg Feb 2016
MMR May 2016
PCRU Feb 2017
New Member
Posted 01 August 2011 - 09:44 PM
Thank you everyone!
Her name is Ivy Ramona ( i am a BIG fan of the ramones so my wife was accepting of the middle name)
She was born with a full head of hair
as for 2 sharters in the house I think she has me beat, for now
New Member
Posted 03 August 2011 - 05:13 PM
Congratulations, Jamar and Welcome Ivy Ramona! I can't think of a better reason to be tired!
Nat
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