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Fish 3

Started by Cathy , Jul 21 2011 07:08 AM

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#1 Cathy

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LocationWilloughby oh

Posted 21 July 2011 - 07:08 AM

Good Morning, After 14 months and all 3 drugs, lots of problems I got my Fish results back yesterday and I'm at 3! Lowest ever!!! I'm on Sprycel right now and have been fighting myelosurpression for about 6 weeks! So I also had to go off my medicine again, which makes me a bit nervous since last time I went off tasigna my numbers spiked back to 57 pretty quickly! So I'm praying that the sprycel will hold the cells down, until I can get my numbers back up and back on my medicine! It's exciting to think I may actually meet the 18 month mark for a 0 for my fish! I seem to be a turtle! And it's so frustrating! But I'm very happy today and celebrating my accomplishment!

Have a great day!

Cathy

DX 5-2010 Started normal hydra then Gleevec for 9 months stopped working

Tasigna after 5 pills pancreatis numbers jumped up quickly

Started Sprycel 100, 8-2010 for a 3 years went down to 50 mg numbers at one point really jumped up quickly

currently on 70 mg for last 2-3 years trying to get onc to reduce dose Numbers never stabilize never MMR till 4-2017 bearly and jump up and down in and out of MMR stayed MMR for 3 months then

After 6 years on sprycel fluid on both lungs, drained still have some fluid on lungs, and currently off drug 4 months now

numbers lower then ever go figure I've never been this low of a number

last 2 tests .0686 and .0181 !!

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#2 JoshLee

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Posted 21 July 2011 - 10:20 AM

Congrats Cathy! You should be so happy with these results, considering all you have been through. Best wishes for continued success! -Josh

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#3 Cathy