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Anyone ever heard of "Buffalo Hump"?


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#1 SheilaW

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Posted 21 July 2011 - 12:23 AM

Hi all,

It's been quite awhile since I have been on the board but I do occasionally check in to see whats going on.  It will be 3 years since diagnosis in Sept. and I feel just fine.  Still on 400 Gleevec.  My question is...Has anyone heard of or are you experiencing Buffalo Hump?  Last appointment I asked the doc what this lump thing at the base of my neck...top of my spine was.  He took one look at it and right away said..."It's the Gleevec".  I definetly did not have it before but thought maybe it was from gaining weight.  I also told him that my mom also has this and she is not on Gleevec...but she is a diabetic.  He said that the insulin and meds that she was taking and that we take for CML are steriod like and can cause it.  I kept questioning him and he insisted it was from the Gleevec.  I went home and googled it and it IS a real thing.  I wondered if anyone else has experienced this??  He also said that it won't go away even if we were to go off Gleevec...so we got that going for us!

Hope all is well with everyone,

Sheila



#2 GerryL

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Posted 21 July 2011 - 01:19 AM

Interesting what the doctor says - when you read the sites that talk about buffalo hump they seem to indicate that medications such as for aids, predisone etc cause it but if you stop taking them it disappears. It can also be caused by Cushing Disease which is hereditary.



#3 hannibellemo

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Posted 21 July 2011 - 06:20 AM

Hi!

I thought that perhaps buffalo hump and dowager's hump might be the same, but they're not. Dowager's hump is caused by osteoporosis, which our TKIs can also accelerate. Buffalo hump is caused by an over abundunce of corticosteriods in our body. Still not sure I get the connection, maybe someone else will be able to weigh in on this.

Glad things are going so great for you otherwise, SheilaW.

Pat


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>


#4 MJB

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Posted 21 July 2011 - 10:33 AM

Has anyone mentioned Cushing syndrome to you? If my memory is correct and thats a big IF..see name, then this fatty pad may be caused by a thyroid issue. TKIs can cause some endocrine side effects I believe.

Take care,

IForget



#5 Trey

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Posted 21 July 2011 - 12:46 PM

I lived in Wyoming for a while and saw my share of Buffalo humps.  I never "experienced it for myself" as you say.....

After reading more closely I am updating this posting:


Is this really what it looks like?

http://www.hxbenefit...nd-removal.html

http://www.bettermed...le/buffalo-hump

Are you sure it isn't just a sebaceous (or epidermal) cyst?

http://en.wikipedia..../Sebaceous_cyst

By the way, Sheila, how have things gone for you since your house burned 2 years ago?  Hope all turned out well.

Message was edited by: Trey



#6 SheilaW

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Posted 21 July 2011 - 04:17 PM

I've read alot more in these articles since I posted this question and I don't have most of these symptoms.  My "hump" is much much smaller than the picture you posted Trey...kinda looks like I have a big back or shoulders...not such a pronounced pretruding mass. I doubt I have this Cushing Disease but maybe a mild reaction or side effect of the drug.   What gets me is how sure the doctor was when he saw and felt it.  I thought for sure someone else must have the same thing from Gleevec.  Maybe others have a small hump and don't really notice it??   Hmmm...can't wait till I go back in to ask him again. 

Trey...Thank you for asking about our home.  We FINALLY moved back on Christmas Eve...after 21 months.  We had many struggles getting it done between the contractor and the insurance company and the rain but finally did it...and it is beautiful! 

Sheila



#7 Susan61

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Posted 21 July 2011 - 05:35 PM

Hi Sheila:  So glad to hear from you, and doing so well on the Gleevec.  Glad you got your home back in order also.  This Buffalo Hump does not sound like anything really to be concerned about, but its always a good idea to mention anything out of the normal to your doctor.  I have bad Arthritis in my neck, and the back of my neck always looks swollen, not to the point like those pictures on that website.  I have had it for years, and it never changes.  I have gained a lot of weight since my diagnosis also.  I hope you continue to join into our conversations and share.

So Glad You Posted

Susan 61



#8 hannibellemo

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Posted 21 July 2011 - 07:31 PM

Photos please, Sheila. I love looking at houses!

Pat


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>


#9 Trey

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Posted 21 July 2011 - 08:58 PM

Pat,

You requested photos:

 

http://www.snopes.co.../moosemount.asp

 

http://www.charlesri...rative/090.html

 

 

Once again, after reading more closely I must update this to admit that you were actually looking for house photos.  So sorry.

 

Message was edited by: Trey


Edited by Trey, 11 September 2015 - 09:26 PM.


#10 TroyLynn

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Posted 21 July 2011 - 09:22 PM

Trey....good grief, man : )



#11 hannibellemo

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Posted 22 July 2011 - 05:36 AM

AGHHH, my eyes, my eyes!


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>


#12 Guest_billronm_*

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Posted 23 July 2011 - 12:43 PM

Pat,

Why does Trey tease you so much! I almost peed my pants when I saw that picture. Boy I gotta admit it you walked right into that one.

                                                Billie



#13 Marnie

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Posted 23 July 2011 - 03:15 PM

That was NOT the moose that I saw on the road the other day!!  Or, maybe that was why he was so intent on getting to the other side.  Why did the moose cross the road??  To get away from the angry buffalo!!



#14 Guest_billronm_*

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Posted 23 July 2011 - 03:36 PM

Dear Marnie,

As soon as I saw the words buffalo hump I knew we were in for some entertainment!

How is everything going? when is you're next bw. Have you seen the new onc yet or gotten any new info at all? Are you hanging in there okay? Cause we can bug you alot.I have wayyyyy to much of that stuff we were talking about it's yours if you want it. Let me know. Between your moose and now a buffalo hump and lucky in fishnet stockings I only ask is it 5:00 somewhere?

                                                                                                                                       lol Billie

Maybe if the moose would put out more maybe we wouldn't have so many angry Buffalos running around.

Message was edited by: Billie Murawski



#15 Trey

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Posted 23 July 2011 - 03:38 PM

Marnie,

Remember who said they were the back end of the Moose (Phil).  Just sayin....

Thanks for getting the connection between the two postings about moose and buffalo.  You win the "I've overcome TKI Fog" award.



#16 Marnie

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Posted 23 July 2011 - 06:57 PM

Well.  .   I really did want to make a comment about Phil being in the back end of that photo, but didn't feel like I knew him well enough, or that his wife would approve, or that his children might see the post and wonder what sort of a guy daddy really is. . .so I refrained.   Though I must say, in the tandem canoe, my husband always blames the person in the front of the boat for where we end up.  .  .



#17 Marnie

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Posted 23 July 2011 - 07:25 PM

HI, Billie. . it is definitely past 5:00, and my wineglass is in my hand.

I've been kind of out of touch lately. . .gotten sucked into school work, developing Smartboard lessons for the upcoming year.  Hours and hours at the computer, but fun stuff to work on.  Had an all day class yesterday, and 6 more coming up.  Then I have to teach 8 classes to Smartboard "newbies" in my building, so need to be developing lessons and Smartboard tricks that will hook them all in.  A little difficult because it's different grade levels and different subject areas. . .so I have my work cut out for me.  The cool thing is, that though the district can't pay us (the mentors) for our time, with some grant money, they did give us each an iPad 2.  Got it yesterday, so spent last night and this morning playing with it.  Technology is so much fun!  (when it works).

PCR test coming up on Monday.  I usually don't get uptight about them, but these last few months have been so stressful that I'm getting concerned about it.  I need to just mellow out.  If it goes up again, I've kind of screwed myself, because I didn't up the meds, and will have to start with a totally new medical system (Kaiser Permanente, which is all inhouse. . .though I think maybe their oncology dept is good), but will be dealing with getting a primary physician and new oncologist and all that, while having to deal with getting a new doc to write a scrip for meds. . .etc, etc.

On the other hand, if everything is fine, and the higher numbers last time were not a trend, then it won't be a big deal at all.  And that's probably the case.  In any event, it will be nice to see a new Kaiser doc and get his perspective.

AND the really exciting thing is that I have an appt with a new oncologist on Aug 2.  He's not a leukemia specialist, but he came very, very highly recommended from the wife of a motorcycle friend (an earlier post).  So I'm very much looking forward to that appointment.  I dropped off a letter of introduction with information, test results, etc to his office (yes, I am a little anal), though he's been on vacation and won't be back until Tuesday, this upcoming week.  So he will have my info a week before seeing me, which will give me a feel for if he has actually taken the time to do any research.

So I'm feeling a lot better about things right now.  I wish that I hadn't lost total confidence in my onc. . .I think he's good. . .another cml patient here in Denver just loves him. . .but she's the kind of person who doesn't know anything about cml, and just does whatever he says.  Also, she got to PCRU very quickly, so no worries for her.  But I'm very frustrated that he doesn't seem to be much interested in log reductions and etc.  I do think he's very good. . .he's just not right for me.  So here's hoping the guy on the Aug 2 appointment is more my style of doctor.

My friend who sees him has CLL, which morphed into Hodgkin's Lymphoma, and she told me that he was absolutely wonderful with communication, and talking through options.  If he's the kind of guy who stays current on research, and knows where to go if/when things turn funky, then I think I'll like him.  So anyway, I'll see him on Aug 2, then will go onto Kaiser from Sept until December, and then if I like the Aug 2 guy, will start back with him in Jan.

I'll let you know if I have any issues with running out of meds.  I think I'll be o.k.  I order as soon as the insurance company lets me, so I have a bit of a cushion.  Unless things go haywire, I should be fine.  Thanks again, for your kind offer.

Tomorrow we may head up to Rocky Mountain Natl Park on the bikes.  Maybe Fall River Road (the original old gravel road thru the park) and back on Trail Ridge Road.  I read about Fall River. . this is amazing. . in the old days, some cars would have to go up it backwards because it was too steep for their transmissions (?) to make it in first gear.  Only reverse was strong enough to pull the cars up it.  I'm HOPING that we don't see any moose or buffalo (or moose with buffalo) because that would probably distract me so much that I would crash the bike and I would die by motorcycle instead of by leukemia.  At least I would die with a picture in my mind of Trey and Phil having an afternoon of enjoyment.



#18 Guest_billronm_*

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Posted 23 July 2011 - 10:22 PM

Hi Marnie,

Oh God now I have to go to bed with that image of that picture in my head. It's worse now because I know who's front  and who's back!  I'm going to go have a Bloody Mary and try to sleep. Wine might not be strong enough !

                         Billie



#19 SheilaW

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Posted 24 July 2011 - 12:46 AM

So glad I could give you all a good laugh...at the expense of my Buffalo Hump!!  Never let anyone ever say that we CMLers don't have a sense of humor!!

Sheila






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