I had insomnia before diagnosis and have had it periodically through out treatment. Anybody else experience insomnia while on Tasigna?
Tasigna and Insomnia?
Posted 11 July 2011 - 09:56 AM
Yes and no. I was having major problems with taking my medicine at about 10PM, hitting the hay at 10:30PM, then waking up wired at 11:15 or 11:30PM, only to fall asleep in a few minutes and stay asleep. Then I also began waking up in the middle of the night, but most of that turned out to be anxiety. I've gotten the anxiety mostly under control so I don't wake up in the middle of the night, but I sometimes still wake up right after I first fall asleep. I usually feel like I've had an adrenaline rush so I don't know if it's still a bit of anxiety or related to the Tasigna, or what.
Posted 12 July 2011 - 10:30 AM
Hi - yes...I do think it has something to do with the time of the day when I take it. Although I know it's hard with the whole 'food' thing...
If I took the 2nd dose after I ate dinner...I would be up!!! For hours...exhausted but couldn't sleep. Now I take an hour before dinner....I'm not as diligent about the 12 hour intervals.
Not sure what time you take that 2nd dose, but may help to change timing?
Posted 12 July 2011 - 11:11 AM
I'm glad you started this discussion. I'm on Sprycel and I've noticed that I go to sleep fine, no problem, but I'm awake after around 5 hours of sleep. If I'm lucky I go back to sleep, but normally once I'm awake - I'm AWAKE!
Fortunately, fatigue is not one of my major side effects, but after a week or two of only 5 hours sleep a night it begins to show. I've discovered that power napping really makes a difference. 20 - 30 minutes sleep (no more or I get groggy) when I'm feeling bushed and I'm fine.
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
Posted 12 July 2011 - 12:36 PM
I take my meds at 6 PM...And then usually some time between 6-8 AM. I am physically exhausted, but my mind is like incredibley alert and I can't get to sleep. If I go to bed at like 11...I don't fall asleep untl 1,2, or on occasion 3 am! I remember having insomnia before I was diagnosed, maybe 5 months or so. I don't know if that means anything. I've been having this for well over a week and a week ago my counts were good...So nothing out of control, at least according to CBC. I do have a prescription for lorazepam..And that seems to help for the nights when it is impossible, but that stuff is kind of addicting. Being on one drug is ENOUGH. I am not particularly anxious, but my life this summer has been pretty simple. No job because my fellowship doesn't run in the summer and I am staying with my parents. I try to get out for a walk and light work out, but maybe my brain just isn't being drained!? Who knows! Kind of comes in waves I guess. Insomina is actually a side affect of Tasigna so maybe this is normal?
Posted 12 July 2011 - 12:42 PM
Hi: I am not on Tasigna. I am on Gleevec. That rush of Adrenaline is Anxiety. I go through it on and off, but when it hits sometimes it lasts for days.
I do not sleep well. My mind is always on something, and not even anything to do with my CML. I think everyone is feeling some type of anxiety these days just trying to deal with everyday life and finances. Then add Cancer to the list just causes a lot of these problems.
You have to just find what works for you to deal and cope with it. Everyone has a different way of handling things. Take Care
Posted 12 July 2011 - 01:04 PM
I have been on Tasigna for a little over a year and it absolutely has made sleep difficult. Going to sleep, waking frequently and early waking. I also can not sleep (nap) during the day which some days I would give anything to do.
Eyes wide open and not enjoying it.
Posted 12 July 2011 - 01:18 PM
Well....We do have a life threatening illness....Maybe being awake to enjoy life is a good thing? Lol! Kidding! Being awake stinks if you're eye lids feel like sand paper but your mind feels like it's being stimulated by electric jelly!
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