I must have a lot in common with Tedsey. Maybe we have common ancestors - or there was some hanky panky going on in the family we don't know about whilst they were in Europe.
I am on 20mg. of Sprycel - for six weeks or so now. My ANC is holding steady at 0.72 (CBC is now done every other week - so that's progress). But my platelets are dropping. I am now at 100 - and if I go below 100, the docs get nervous. But after following Tedsey's path - I won't worry until I get to 50. Red blood is below normal, but steady for months now (RBC = 3.4).
I just can't believe that only 20 mg. Sprycel is so effective at nailing my Neutrophils and now Platelets. They took blood for a FISH/PCR test to see if the low Sprycel is working. FISH was already zero - so I am very interested in the PCR level. For those of you who quibble about going from 0.001 to 0.002 PCR- ((#*)(#$*&$@_#)_)_). I will be thrilled to go from 45% to 10% (IS scale). I have been living at this high level for over a year. And if it were not for the testing, I would not know I have CML. No symptoms, no side affects. Only the sore throat and dry mouth when my ANC was below 0.5.
I am up to Curcumin at 8 grams equivalent a day as per Dr. Aggarwal. Seems to be some correlation with Curcumin 'enhancing' the effect of Sprycel. We'll see what the PCR shows.