3 replies to this topic

[donnadavis]

  Five  weeks  ago I switched from Tasigna to Sprycel. I had a bone morrow  at  that  time. After two weeks I begin to feel bad. I have been in  the  hospital  for the last two weeks. I have ran high fevers up to 105 and low blood pressure 50/30. My platelet count was low but not critically. I really didn't think I was going to make it. They

did all  the test, started me on antibiotics for fungus, bacteria and virus, also steroids. I  had cold chills that left me exhausted. I came home today with seventeen bottles of medicines. The one thing I still haven't found out is what happened. I tried to pin the hospital  onc. down and all he could tell me was I had two mutations (which I didn't know I had) and this is a leukemia thing. I am still spiking fevers about twice a day. Anyone else?

[Susan61]

Hi:  I am so sorry your having such a hard time.  I have never been on Tasigna or Sprycel.  I have only been on Gleevec for many years.  This sounds like a very confusing issue.  Odd that this happened after you switched.  I cannot see the connection between that and a mutation.  Trey would be the one to answer you on that.

I would definitely talk to the Oncologist, and demand some answers.  I would even go see another doctor to see what he thought.  Are you seeing a CML specialist?  Sometimes just because they are a Oncologist does not mean they are experienced with CML.  I ran into that problem  last year, but I switched doctors when I realized this doctor I saw could not give me a straight answer.

You just went through a lot being in the hospital.   I hope you start feeling better and find out what is actually going on.

I hope you did not get an infection at the time of the bone marrow being performed.  Seems odd that this all happened after the BMB,  It could be a lot of different things.

I assume you got switched because Tasigna was not working any longer. Please let us know how your doing.  Hopefully someone else can give you a better answer than I could

Susan

[Trey]

The easiest way to get very sick is to go into a hospital.  Could be related, even if they could not diagnose the exact issue.

What is the second mutation?

[Teresabourgeois]

Sorry you aren't feeling well.  I recently had a BMB and got an infection 3 days after.  It took 2 different antibotics to stop the fever.  We never really found out what the fever was from.  I did pain in my lower back but no UT infection signs