4 replies to this topic

[houtex54]

Routine check-up last week.  Good News!  Status is now described as "Complete Molecular Response".  Aside from the encouraging sound of that, it also prompted my onc to reduce the frequency for BMA samples to once every two years!  

My onc and research nurse both agreed that my elevated blood sugar was a side effect of Tasigna.  I'm not sure I agree.  My blood sugar has never met the most recent standards for "normal" (which is to say not diabetic) - at least not in the past 20 years or so.  Regardless, I am forced to admit that I have no alternative other than dietary restraint and regular exercise (both of which are loathsome concepts).

The check up also discovered atrial fibrillation - which can lead to infarcts and such.  (More diet, more exercise, and toss in some low-dose aspirin - and try to avoid having a pace-maker installed).  The most common arrhythmia meds are on the "Avoid these drugs in combination..." list for Tasigna.

Oh well.

Cheers!

Doug

[Trey]

Current thinking is that BMB/BMA is not necessary after MMR (3 log reduction), and certainly not after CMR (PCRU).

[GerryL]

Hi Doug,

Congratulations on achieving your CMR. Interesting your doc still likes to do BMAs, mine will only look at doing one if I start trending upwards and I've only at MMR at the moment.

Good luck with the diet and exercise, hopefully you can find something you like doing, much better than having to take medication which may impact something else in your body.

Gerry

[Tedsey]

What good news! (as I buck up for mine in a few weeks).  Here is to sustaining MMR indefinitely and no more BMBs!!!

Teds

[CallMeLucky]

Great news, I had a similar experience at my last visit.  I went in for scheduled BMB/BMA and the doctor cancelled it after reviewing all test results.  Hopefully we won't have a need for one in the future!

Diet and exercise can be hard with TKI, but if you push through, you do actually wind up feeling better.  I've been very good about exercising, but happen to be in a lull right now and I definitely feel the difference.  I need to start again in the next week or two.  It is hard to start again once you stop, but I know I have to do it.

Best of luck to you....