Yesterday my little sister died at age 34 after 9 yrs of battling breast cancer. That same day one year ago I was diagnosised with CML. How crazy is that? I have tried Gleevec, Sprycell and am now on the trial drug ponatinib. All of these drugs have messed with my platelets and white and red counts. This last one I was only on for 3 weeks before being taken off. I have had several platelet infusions. Dr Deininger is giving me 3 more months with the trial medication if I can get my platelets to at least 75. Otherwise I am looking at a BMT. I am scared. I have been so strong and so brave for my entire family. I was the one taking care of my sister and being a patient all at the same time. I love her and she is my best friend. For the last 2 weeks I have watched her slowly bleed out, that started because of low platelets. It was awful to watch what cancer has done to her body. It seemed inhumane what she went through. I don't feel so strong today. I don't know who else to tell this to, but I am terrified I will go the same way.I tend to keep my feelings to myself but today I felt like I was going to burst. I have been grateful for this website to be able to read your post and to educate myself.
Lots of Love to all of you,