10 replies to this topic

[jjg]

Well not quite but I have discovered my first cool side effect

I started gleevec the day after my 38th birthday with significant numbers of gray hairs. You couldn't see them because I put a rinse through my hair every 6 weeks.

Well as ya'll understand I've been a bit tired and for 4 months there has been no rinse going through my hair. There has also been a decent amount of hair loss - I estimate I'm down at least 30% in hair volume. The absolutely great most coolest bit is that the hair I've lost included 99.9% of my gray hairs.

I am nolonger a person of grey hairs!!!!

So if it wasn't for the saggy eyes I'd look years younger.

Anybody else notice this? Does anybody know why it targets gray hair?

Maybe novartis has missed it's target market. Gleevec: the new revolutionary drug that removes gray hair....but wait there's more, it can also stop you dying of cancer

[Trey]

I had that happen at first, but my body found a workaround and brought the gray hair back.  Sometimes those workarounds are useful, and sometimes they suck.

PhilB can prescribe other "elixers" for you.....But his elixers require mixers.  Sometimes they have umbrellas.  Sometimes olives.  Sometimes just "mouth to mouth" (his mouth to the mouth of the bottle).  Not that there's anything wrong with that....

[everonward]

I do have my highlights done, but the main bulk of my hair has held it's colour, I am of an age where I would be expecting to see grey. Initially I had some hair loss, which pleased my hairdresser as my hair was quite thick.  The hair soon grew back except now it seems to grow sideways i.e. thicker rather than longer. My eyebrows are however greying, but I have these dyed. So perhaps Glivec is an elixir.

Trey may I just add though that I for one approve of PhilB's elixir plus mixer - roll on the weekend.

[Rissa]

An elixir sounds good!  I think I'll have one this weekend......Parrot Bay pineapple rum!  Yum, yum!

[Susan61]

No I have not lost my Gray Hair.  I have a full head of Gray hair, but eveyone told me it was a very pretty shade of Gray.  Then I started to color my hair, which I still do.  The only thing with me is that I had poker straight hair my whole life, and now the Gleevec has given me curly hair.  I get tight curls on one side of my head more than the other.  I was thinking of letting it grow back out to the Gray at some point.

[GerryL]

I think I read somewhere that it is only around 10% of people have their hair change from grey as a side effect. 

[PhilB]

Billie Murawski wrote:
Gleevac turned my hair and eyebrows pure white.and gave me raccoon eyes.The puffiness is gone from my eyes now but my eyelids sag from being so puffy for over 3 years nothing will help that except plastic surgery I am not into that stuff. My dx was aug.2007. So the G gave me a complete makeover from head to toe.

From head to toe?  Now that's what I call a saggy eyelid!

[Rissa]

Hi Billie,   You don't mix up anything special, but you can.  I just pour it over ice, but I'm sure you could mix it with some pineapple juice and crushed ice.  It's very good all by itself though.  :-)

[jjg]

Well thanks for the feedback guys. I'll keep hope that the gray stays away and I'd love some curls. When the TKIs do something nice (in addition to keeping us alive of course) it is certainly worth celebrating. I've a hens night tonight so I'll give celebrating my full attention but I'll probably get too tired too early.

And if the grays do come back it seems you guys have some helpful suggestions for other elixirs that will give a temporary illusion of youth