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Back Pain on Gleevec?


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#1 Tenderheart

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Posted 14 June 2011 - 08:04 PM

Does anyone else have muscle pain from Gleevec?



#2 CallMeLucky

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Posted 14 June 2011 - 09:56 PM

Oh lord yes!  Muscle pain is my number two side effect right behind fatigue and sometimes I wonder if it is the muscles that are making me fatigued.  Mostly the legs, but certainly get it in the back.  Exercise can help when I push myself to do it.  It actually helps a lot but it hurts when I start out.  By the end I feel pretty good and it lasts a good part of the day.  When I skip more then one day of exercise the pain starts to get worse, especially at night when they kind of throb.  Had a long talk with my doctor about it yesterday.  There isn't a ton she had for it.  I'm going to look into acupuncture to see if I can get anywhere with that.


Date  -  Lab  -  Scale  -  Drug  -  Dosage MG  - PCR
2010/Jul -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 1.2%
2010/Oct -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.25%
2010/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.367%
2011/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.0081%
2011/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2011/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.00084%
2011/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.004%
2012/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Dec -  MSKCC  -  Non-IS  -  Sprycel  - 100 - 0%
2013/Jan -  Quest  -  IS  -  Sprycel  -  50-60-70  - 0%
2013/Mar -  Quest  -  IS  -  Sprycel  -  60-70  - 0%
2013/Apr -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.036%
2013/May -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.046%
2013/Jun -  Genoptix  -  IS  -  Sprycel  - 50 - 0.0239%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0192%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0034%
2013/Oct -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0054%
2014/Jan -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0093%
2014/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.013%
2014/Apr -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0048%
2014/Jul -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2014/Nov -  Genoptix  -  IS  -  Sprycel  - 100 - 0.047%
2014/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0228%
2016/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Dec - Genoptix  -  IS  -  Sprycel  -  100 - 0%
 

 


#3 Susan61

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Posted 14 June 2011 - 10:18 PM

I ache all over all the time, but I also have Arthritis in my spine.  I have degnerative disc disease for over 20 years.  I do not think all of my pains are from my Gleevec.  I have a combination of things, but I do get the leg pain.   The spasms that I get in my hands and feet I know are from the Gleevec.  I also have Arthritis in my knees.  To try to separate what pain is from what is very hard to do for me.



#4 SunNsand

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Posted 15 June 2011 - 12:26 PM

Yes! I do a lot of walking and I still hurt but I make myself anyway. I'm afraid if I stop moving, this disease will run right over me. I also have ortho issues which adds to it but I really do try to push myself. You might try some over the counter pain reliever for muscle aches. 



#5 nathaliece

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Posted 16 June 2011 - 09:47 AM

I join in the chorus of "Yes!"  It sounds like most of us have muscle and back pain.  Mine is in my hands, back and legs.  I get regular massages (light, not deep tissue) which has helped a great deal.  The massage therapist shared with me that light massages release your pain relieving and stress relieving hormones.  Hang in there!

Nat






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