I was diagnosed on May 22nd at St. Johns Hospital in Joplin, MO (yes, the same hospital destroyed by the tornado 90 minutes later!) I began Gleevac on June 5th and just received my results: WBC count now 53 down from high of 86. Quick question: how long did it take you to receive a "normal" WBC count after beginning Gleevec? Thank you for your support! Lisa
Just received first WBC results after beginning Gleevec
Posted 13 June 2011 - 05:32 PM
Hi Lisa: Give it time to do its job. You just started it, but the fact that your counts are coming down shows its working. Your blessed already that you were not at the hospital when it got hit. That was a terrible tornado, and my heart and prayers went out for everyone that day when I saw it on the news.
Keep us posted on how your doing. I started Gleevec many years ago, therefore, I do not remember how fast I responded to the Gleevec and getting my counts down to normal.
Posted 13 June 2011 - 07:03 PM
Everyone is different, for me I started Gleevec in the beginning of July last year, initially it sent some of my counts up in August, then in early September most counts were normal, though Lymphocytes and Platelets dropped slightly into low. By mid September everything was normal, which is CHR (Complete Hematological Response). There are a few more milestones to achieve after that. Trey has collated the information on various threads, so have a read of those if you haven't already.
The main thing is that you are responding to Gleevec.
Posted 14 June 2011 - 05:51 AM
So was that really a tornado, or did you just react to your dx like Zazuum in the Arabian Knights when someone pulled his tail?
Congratulations on a good solid start towards the first of the treatment goals. CHR here you come!
Posted 14 June 2011 - 09:07 AM
You will likely have normal CBC results in about 6 weeks, although the platelets may take a bit longer to normalize.
Posted 14 June 2011 - 10:17 AM
I believe the official milestone for CHR is three months. CHR is Complete Hematological Response and signifies that your counts have returned to normal, although keep in mind many people's counts actually dip a little low but they are still considered CHR. Looks like you are starting with a relatively low WBC for CML diagnosis, you are around where I was. Give it a few weeks, the fact the number is going down is the most important thing, it shows it is working. At this point the only worry would be if the numbers were going up.
Posted 14 June 2011 - 01:46 PM
I have never gone back to normal after Gleevec and Sprycel. Some people stay low. I am one of them. But it has been liveable. Nevertheless, low WBC do not mean you are not in CHR. As long as your counts are stable and hopefully "close to normal" that is acceptable.
Best of luck and quick healing to you.
Posted 15 June 2011 - 10:33 AM
My count got back to normal after four weeks on gleevc, but the way CML behaves in everybody differs. Just tell your mind it will be fine, Cheers.
Posted 17 June 2011 - 04:24 PM
I was diagnosed on May 10. My blood count was 135. After a week it had climbed to 151. Then it started going down each week to 85, 43, 22, 8 and 4. This past week it was 2,2 and my onc had me to start taking the Gleevec every other day until I go back next week. Hope yours goes down as well as mine.
Posted 18 June 2011 - 12:00 AM
Hi Lisa -
For my husband, 34yrs, he started Gleevec Nov 2010 with 42,000 WBC and 3 weeks later, it was 4,500. Ever since, his WBC has hovered around that number. He had his 2nd BMB on May 16th. Like someone said earlier, everyone is different. We have to take one day at a time. Glad you guys made it through the tornado okay! And always glad to share our experience and information.
Good luck to you and God bless -
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