Hi All,
I've posted before, but it's usually just about medical stuff. How do you plan for the future when everything seems so uncertain? I just started treatment a little over 4 months ago and I am doing fine I guess. FISH showed 22% BCR-ABL after about 3.5 months so that is encouraging, but I just find it really hard to let myself think happy thoughts about the future. I just have a hard time getting over the fact that my health is going to be "Up in the Air" for the rest of my life. Even if I get to PCRU, who knows what's going to happen next? I guess life is just a little more complicated than I had planned it to be at 27. Most days I feel good and try to do everything I can to "stay in the moment" but other days when I am working to secure a good future for myself, I end up wondering if it's ever going to pay off. I am so thankful for the hope we have with the TKI's, but the future just seems SO uncertain. I realize that everyone has to deal with these issues at some point, but I just feel like my "mortality bubble" was popped a little too early. What has brought some of you to a sense of peace and solidity while living with this disease? Especially dealing with all of the questions and doubts that come up in the first year that you were diagnosed. Thanks for your time and advice! -Josh