I have noticed that both of my feet have a feling of what I describe of being asleep as well as my left hand. It bothers me at night s my feet, although warm, have a cold feeling and it is hard sometime to get to sleep. I have mentioned this issue with the Onocolgist and my PCP. The Onc said he wasn't for sure about this issue but would check with Novartis to see if others have had the same issue. They have set me up an apointment to see a Neuroligist in a few weeks. The PCP is with me as both of us agree it is a side effect of Tasigna. I saw the posts about the brain fog issue and believe me sometimes I feel like I have that issue also. I have noticed at work I make alot more mistakes with cases audits. I don't feel like I am as efficient as I once was. I like to think of the issue as MADCOW!! I could not ever give blood as I had been in Europe in the 80's during the MADCOM epidemic. They say they can't say you have it as there are not tests for it. So I just blame all my side effects and ills on it. Maybe CML is MADCOW in disguise!!!! Just Kidding!!
So far, since I have been diagnosed in February with CML, Thinks have been relatively fine. I have a few issues with the Tasigna and seem to have gotten used to the few things that bother me on a daily basis. I feel the worst issue so far, other that the numbness issue is fatigue. I seem to get that more easily. My wife and I both have been walking some and we took a nice camping trip. The fatigue is definitely an issue and I also stay out of direct sunlight as much as possible. Had heard about people more easily sunburned as the sensitivity to it is intensified with these drugs. I keep the sunscreen handy.
I'd like to give a thanks to my Onocologist, Dr Bhatia, at Community North Cancer Care here in Indianapolis. It helps to have someone that is knowledgeable with CML. He listens, and we talk through my concerns and issues. I know he said after I was diagnosed with CML within a short period he had four or five more people diagnosed. The folks there have been very nice and I just wanted to give them all a thumbs up here on the site.